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PubPharm (156)
1
Different patient versus provider perspectives on living with Cushing's disease
enthalten in:
Pituitary
| 2024
von
Halstrom, A.
|
Lin, I.
|
Lin, A.
| +3
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2
The impact of mental health on health-related quality of life in patients with NF2-related Schwannomatosis
enthalten in:
Scientific reports
| 2024
von
Freier, A.
|
Lawson McLean, A.
|
Loeschner, D.
| +2
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3
The parent and family impact of CLN3 disease : an observational survey-based study
enthalten in:
Orphanet journal of rare diseases
| 2024
von
Schulz, A.
|
Patel, N.
|
Brudvig, J.
| +3
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4
The parent and family impact of CLN3 disease: an observational survey-based study
enthalten in:
Orphanet journal of rare diseases
| 2024
von
Schulz, A.
|
Patel, N.
|
Brudvig, J.
| +3
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5
Association of sociodemographic and clinical factors with the quality of life of Brazilian individuals with Neurofibromatosis type 1 : a cross-sectional study
enthalten in:
Anais brasileiros de dermatologia
| 2024
von
Bicudo, N.
|
Germano, C.
|
de Moraes, R.
| +3
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6
Different patient versus provider perspectives on living with Cushing’s disease
enthalten in:
Pituitary
| 2024
von
Halstrom, A.
|
Lin, I.
|
Lin, A.
| +3
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7
The impact of mental health on health-related quality of life in patients with NF2-related Schwannomatosis
in:
Scientific Reports
| 2024
von
Anna Freier
|
Anna C. Lawson McLean
|
Denise Loeschner
| +2
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8
Effects of asfotase alfa in adults with pediatric-onset hypophosphatasia over 24 months of treatment
enthalten in:
Bone
| 2023
von
Seefried, L.
|
Genest, F.
|
Petryk, A.
| +1
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9
Composite endpoints, including patient reported outcomes, in rare diseases
enthalten in:
Orphanet journal of rare diseases
| 2023
von
Verbeeck, J.
|
Dirani, M.
|
Bauer, J.
| +3
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10
Composite endpoints, including patient reported outcomes, in rare diseases
enthalten in:
Orphanet journal of rare diseases
| 2023
von
Verbeeck, J.
|
Dirani, M.
|
Bauer, J.
| +3
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Thema: Quality of life
Medienart
156
Aufsätze
144
E-Artikel
144
E-Ressourcen
12
Gedruckte Aufsätze
Zeitschriftentitel
48
Orphanet journal of rare diseases
15
Quality of life research
12
Orphanet Journal of Rare Diseases
7
The European journal of health economics
6
Journal of patient-reported outcomes
5
Quality of life research : an international jou...
4
Archives of orthopaedic and trauma surgery
4
Journal of neurology
3
BMC oral health
3
BMC psychiatry
3
Der Onkologe
3
Health and quality of life outcomes
3
Journal of child and family studies
3
Journal of community genetics
3
Pediatric surgery international
3
Respiratory research
3
Rheumatology international
2
Neurological research and practice
2
Neurology and Therapy
2
Pituitary
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Thema
Quality of life
103
Rare disease
53
Journal Article
49
Rare diseases
21
Research Support, Non-U.S. Gov't
16
Patient-reported outcomes
13
Literature review
13
Medicine
13
R
12
Appraisal
12
Chronic disease
12
Cognitive processes
12
Parents
11
Qualitative research
10
Children
9
Patient reported outcomes
8
Caregiver burden
8
Mental health
8
Response shift
8
Review
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Erscheinungszeitraum
99
2020-
57
2010-2019
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Sprache
151
Englisch
3
Deutsch
2
Spanisch
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