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PubPharm (102)
1
Protocol for the Development of a Tool to Map Systemic Sclerosis Pain Sources, Patterns, and Management Experiences: A Scleroderma Patient-Centered Intervention Network Patient-Researcher Partnership
enthalten in:
ResearchSquare.com
| 2024
von
Santo, T.
|
Golberg, M.
|
Nassar, E.
| +9
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2
The association of resilience and positive mental health in systemic sclerosis : A Scleroderma Patient-centered Intervention Network (SPIN) cohort cross-sectional study
enthalten in:
Journal of psychosomatic research
| 2024
von
Neyer, M.
|
Henry, R.
|
Carrier, M.
| +19
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3
Use and perceptions of nutrition information resources in systemic sclerosis : a Scleroderma Patient-centred Intervention Network (SPIN) cohort study
enthalten in:
Clinical and experimental rheumatology
| 2024
von
Østbø, N.
|
Yakes Jimenez, E.
|
Carrier, M.
| +3
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4
Factors associated with physical function among people with systemic sclerosis : a SPIN cohort cross-sectional study
enthalten in:
Rheumatology (Oxford, England)
| 2024
von
Dal Santo, T.
|
Rice, D.
|
Carrier, M.
| +20
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5
Measurement equivalence of the English and French versions of the self-efficacy to manage chronic disease scale : a Scleroderma Patient-Centered Intervention Network (SPIN) study
enthalten in:
Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation
| 2024
von
Choi, A.
|
Rapoport, C.
|
Kwakkenbos, L.
| +7
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6
Factors associated with satisfaction with social roles and activities among people with systemic sclerosis : a Scleroderma Patient-centered Intervention Network (SPIN) cohort cross-sectional study
enthalten in:
RMD open
| 2024
von
Dal Santo, T.
|
Rice, D.
|
Carrier, M.
| +118
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7
A qualitative interview study exploring the psychological health impacts of the SPIN-CHAT program among people with systemic sclerosis at the onset of COVID-19 : perceptions of trial participants and research team members
enthalten in:
Disability and rehabilitation
| 2024
von
Wurz, A.
|
Duchek, D.
|
Ellis, K.
| +23
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8
Researcher and patient experiences of co-presenting research to people living with systemic sclerosis at a patient conference : content analysis of interviews
enthalten in:
Research involvement and engagement
| 2024
von
Wurz, A.
|
Ellis, K.
|
Nordlund, J.
| +12
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9
Moderators of Loneliness Trajectories in People with Systemic Sclerosis During the COVID-19 Pandemic : A SPIN COVID-19 Cohort Longitudinal Study
enthalten in:
International journal of behavioral medicine
| 2024
von
Rapoport, C.
|
Choi, A.
|
Kwakkenbos, L.
| +113
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10
Measurement equivalence of the English and French versions of the self-efficacy to manage chronic disease scale: a Scleroderma Patient-Centered Intervention Network (SPIN) study
enthalten in:
Quality of life research
| 2024
von
Choi, A.
|
Rapoport, C.
|
Kwakkenbos, L.
| +6
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Thema
70
Journal Article
33
Research Support, Non-U.S. Gov't
30
Systemic sclerosis
27
Scleroderma
12
systemic sclerosis
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scleroderma
7
Cohort multiple RCT
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7
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6
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5
COVID-19
5
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5
Randomized controlled trial
5
Self-management
5
Tele-rehabilitation
5
support groups
4
Internet intervention
4
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Erscheinungszeitraum
57
2020-
40
2010-2019
5
2000-2009
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