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PubPharm (155)
1
Mortality in adults with sickle cell disease : Results from the sickle cell disease implementation consortium (SCDIC) registry
enthalten in:
American journal of hematology
| 2024
von
Njoku, F.
|
Pugh, N.
|
Brambilla, D.
| +11
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2
Burden of employment loss and absenteeism in adults and caregivers of children with sickle cell disease
enthalten in:
Blood advances
| 2024
von
Gordon, R.
|
Welkie, R.
|
Quaye, N.
| +6
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3
Social determinants of health and treatment center affiliation : analysis from the sickle cell disease implementation consortium registry
enthalten in:
BMC health services research
| 2024
von
Mendez, G.
|
Nocek, J.
|
Brambilla, D.
| +14
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4
Social determinants of health and treatment center affiliation: analysis from the sickle cell disease implementation consortium registry
enthalten in:
BMC health services research
| 2024
von
Mendez, G.
|
Nocek, J.
|
Brambilla, D.
| +13
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5
Stepping Systematically Forward Toward Health Equity in Sickle Cell Disease
enthalten in:
JAMA pediatrics
| 2024
von
Marsh, A.
|
Treadwell, M.
CommentIn: JAMA Pediatr. 2024 Mar 1;178(3):274-282. - PMID 38190311
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6
Caught between pity, explicit bias, and discrimination : a qualitative study on the impact of stigma on the quality of life of persons living with sickle cell disease in three African countries
enthalten in:
Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation
| 2024
von
Munung, N.
|
Treadwell, M.
|
Kamga, K.
| +5
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7
Perceptions and preferences for genetic testing for sickle cell disease or trait : a qualitative study in Cameroon, Ghana and Tanzania
enthalten in:
European journal of human genetics : EJHG
| 2024
von
Munung, N.
|
Kamga, K.
|
Treadwell, M.
| +5
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8
Mortality in adults with sickle cell disease : Results from the sickle cell disease implementation consortium (SCDIC) registry
enthalten in:
American Journal of Hematology
| 2024
von
Njoku, F.
|
Pugh, N.
|
Brambilla, D.
| +11
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9
The effect of an adapted digital mental health intervention for sickle cell disease on engagement: a pilot randomized controlled trial
enthalten in:
BMC Digital Health
| 2023
von
Nardo, E.
|
Parchuri, E.
|
O’Brien, J.
| +8
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10
Looking ahead : ethical and social challenges of somatic gene therapy for sickle cell disease in Africa
enthalten in:
Gene therapy
| 2023
von
Munung, N.
|
Nnodu, O.
|
Moru, P.
| +4
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155
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Pediatric blood & cancer
9
American journal of hematology
8
International journal of adolescent medicine an...
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Health and quality of life outcomes
6
Journal of pain and symptom management
5
Journal of genetic counseling
5
Journal of the National Medical Association
4
American Journal of Hematology
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BMC health services research
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Blood advances
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Journal of behavioral medicine
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Journal of community genetics
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PloS one
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BMC medical ethics
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Hematology (Amsterdam, Netherlands)
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JMIR Research Protocols
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JMIR research protocols
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Journal of pediatric hematology/oncology
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Thema
91
Journal Article
34
Research Support, N.I.H., Extramural
21
Research Support, Non-U.S. Gov't
20
Sickle cell disease
15
sickle cell disease
14
Research Support, U.S. Gov't, P.H.S.
8
Hydroxyurea
8
X6Q56QN5QC
6
Klinische Studie
6
Comparative Study
6
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6
Multicenter Study
5
Ghana
5
Item response theory
5
Patient-reported outcomes
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Africa
4
Genetic counseling
4
Models—biopsychosocial
4
Patient-reported outcome measures
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Erscheinungszeitraum
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1900-1999
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