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/vufind/Search/Results?lookfor=%22Tingley%2C+Kylie%22&type=Person&sort=year
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PubPharm (41)
1
Assessing the quality and value of metabolic chart data for capturing core outcomes for pediatric medium-chain acyl-CoA dehydrogenase (MCAD) deficiency
enthalten in:
BMC pediatrics
| 2024
von
Iverson, R.
|
Taljaard, M.
|
Geraghty, M.
| +47
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2
Assessing the quality and value of metabolic chart data for capturing core outcomes for pediatric medium-chain acyl-CoA dehydrogenase (MCAD) deficiency
enthalten in:
BMC pediatrics
| 2024
von
Iverson, R.
|
Taljaard, M.
|
Geraghty, M.
| +47
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3
Patient Engagement in a Multi-Stakeholder Workshop to Plan the Collection of Patient-Oriented Outcomes for Children with Inherited Metabolic Diseases
enthalten in:
Healthcare quarterly (Toronto, Ont.)
| 2022
von
Tingley, K.
|
Smith, M.
|
Pallone, N.
| +2
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4
Families' healthcare experiences for children with inherited metabolic diseases : protocol for a mixed methods cohort study
enthalten in:
BMJ open
| 2022
von
Chow, A.
|
Iverson, R.
|
Lamoureux, M.
| +40
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5
Correction to : Establishing a core outcome set for mucopolysaccharidoses (MPS) in children: study protocol for a rapid literature review, candidate outcomes survey, and Delphi surveys
enthalten in:
Trials
| 2021
von
Howie, A.
|
Tingley, K.
|
Inbar-Feigenberg, M.
| +18
ErratumFor: Trials. 2021 Nov 17;22(1):816. - PMID 34789302
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6
Correction to: Establishing a core outcome set for mucopolysaccharidoses (MPS) in children: study protocol for a rapid literature review, candidate outcomes survey, and Delphi surveys
enthalten in:
Trials
| 2021
von
Howie, A.
|
Tingley, K.
|
Inbar-Feigenberg, M.
| +17
Wird geladen...
7
Establishing a core outcome set for mucopolysaccharidoses (MPS) in children : study protocol for a rapid literature review, candidate outcomes survey, and Delphi surveys
enthalten in:
Trials
| 2021
von
Howie, A.
|
Tingley, K.
|
Inbar-Feigenberg, M.
| +18
ErratumIn: Trials. 2021 Dec 9;22(1):893. - PMID 34886877
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8
Establishing a core outcome set for mucopolysaccharidoses (MPS) in children: study protocol for a rapid literature review, candidate outcomes survey, and Delphi surveys
enthalten in:
Trials
| 2021
von
Howie, A.
|
Tingley, K.
|
Inbar-Feigenberg, M.
| +17
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9
Patient and family engagement in the development of core outcome sets for two rare chronic diseases in children
enthalten in:
Research involvement and engagement
| 2021
von
Vanderhout, S.
|
Smith, M.
|
Pallone, N.
| +8
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10
Patient and family engagement in the development of core outcome sets for two rare chronic diseases in children
enthalten in:
Research involvement and engagement
| 2021
von
Vanderhout, S.
|
Smith, M.
|
Pallone, N.
| +8
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Medienart
41
Aufsätze
37
E-Artikel
37
E-Ressourcen
4
Gedruckte Aufsätze
Zeitschriftentitel
11
Orphanet journal of rare diseases
7
Trials
5
BMC pediatrics
5
Journal of inherited metabolic disease
2
Genetics in medicine
2
Headache
2
Research involvement and engagement
1
BMJ open
1
Genetics in medicine : official journal of the ...
1
Healthcare quarterly (Toronto, Ont.)
1
JIMD reports
1
Journal of Inherited Metabolic Disease
1
Pediatrics
1
The Canadian journal of neurological sciences. ...
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Thema
18
Journal Article
11
Research Support, Non-U.S. Gov't
10
Rare diseases
8
Inherited metabolic diseases
7
MCAD deficiency
7
Review
5
Core outcome set
5
Data quality
5
PKU
4
Acyl-CoA Dehydrogenase
4
Core outcome sets
4
EC 1.3.8.7
4
Outcomes research
4
Patient-oriented outcomes
4
Qualitative research
3
Affected Child
3
Conceptual Category
3
Datenbank
3
Delphi
3
Family Experience
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Erscheinungszeitraum
20
2020-
21
2010-2019
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Sprache
40
Englisch
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