Suchergebnisse - "Rare disease"

PubPharm (8.250)

21

Health-related quality of life and associated risk factors in patients with Multiple Osteochondromas : a cross-sectional study

enthalten in: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation | 2024

von Boarini, M. | Tremosini, M. | Di Cecco, A. | +12

22

A quantitative and qualitative analysis of patient group narratives suggests common biopsychosocial red flags of undiagnosed rare disease

enthalten in: Orphanet journal of rare diseases | 2024

von Al-Attar, M. | Butterworth, S. | McKay, L.

23

A quantitative and qualitative analysis of patient group narratives suggests common biopsychosocial red flags of undiagnosed rare disease

enthalten in: Orphanet journal of rare diseases | 2024

von Al-Attar, M. | Butterworth, S. | McKay, L.

24

SARS-COV2 Pandemic Serosurvey in a Rare Disease Population : SARS-COV2 Pandemic Serosurvey in a Rare Disease Population

enthalten in: ClinicalTrials.gov | 2024

25

PICO questions and DELPHI methodology for improving the management of patients with acute hepatic porphyria

enthalten in: Revista clinica espanola | 2024

von Riera-Mestre, A. | García Morillo, J. | Castelbón Fernández, J. | +6

26

Prices and Trends in FDA-Approved Medications for Sarcomas

enthalten in: Cancers | 2024

von Hwang, C. | Agulnik, M. | Schulte, B.

27

Pathway for Development and Validation of Multi-domain Endpoints for Amyloid Light Chain (AL) Amyloidosis

enthalten in: Therapeutic innovation & regulatory science | 2024

von Signorovitch, J. | Zhang, J. | Brown, D. | +6

28

A Multi-Site Leukopak Repository Providing Annotated Biospecimens for Approved Investigator-Directed Biomedical Research Initiatives : A Multi-Site Leukopak Repository Providing Annotated Biospecimens for Approved Investigator-Directed Biomedical Research Initiatives

enthalten in: ClinicalTrials.gov | 2024

29

Mediastinal malignant rhabdoid tumor in an infant : A rare case report

enthalten in: Radiology case reports | 2024

von Zarei, E. | Alemohamad, O. | Rahimi, Z. | +6

30

Patient-Centric Approaches : Revolutionizing Rare Disease Drug Research

enthalten in: Infectious disorders drug targets | 2024

von Verma, A. | Awasthi, A.