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PubPharm (19)
1
Researcher and patient experiences of co-presenting research to people living with systemic sclerosis at a patient conference : content analysis of interviews
enthalten in:
Research involvement and engagement
| 2024
von
Wurz, A.
|
Ellis, K.
|
Nordlund, J.
| +12
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2
Moderators of Loneliness Trajectories in People with Systemic Sclerosis During the COVID-19 Pandemic : A SPIN COVID-19 Cohort Longitudinal Study
enthalten in:
International journal of behavioral medicine
| 2024
von
Rapoport, C.
|
Choi, A.
|
Kwakkenbos, L.
| +113
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3
Validity, Reliability, and Differential Item Functioning of English and French Versions of the 10-Item Connor-Davidson Resilience Scale in Systemic Sclerosis : A Scleroderma Patient-Centered Intervention Network Cohort Study
enthalten in:
Arthritis care & research
| 2023
von
Neyer, M.
|
Henry, R.
|
Carrier, M.
| +100
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4
Evaluation of Measurement Properties and Differential Item Functioning in the English and French Versions of the University of California, Los Angeles, Loneliness Scale-6 : A Scleroderma Patient-Centered Intervention Network (SPIN) Study
enthalten in:
Arthritis care & research
| 2023
von
S Rapoport, C.
|
Choi, A.
|
Kwakkenbos, L.
| +108
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5
Mental health symptoms in scleroderma during COVID-19 : a Scleroderma Patient-centred Intervention Network (SPIN) cohort longitudinal study
enthalten in:
Clinical and experimental rheumatology
| 2023
von
Henry, R.
|
Kwakkenbos, L.
|
Carrier, M.
| +106
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6
Patterns of patient-reported symptoms and association with sociodemographic and systemic sclerosis disease characteristics : a scleroderma Patient-centered Intervention Network (SPIN) Cohort cross-sectional study
enthalten in:
EClinicalMedicine
| 2023
von
Wojeck, R.
|
Knisely, M.
|
Bailey, D.
| +107
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7
Differential Item Functioning on the Cochin Hand Function Scale Among People With Systemic Sclerosis by Language, Sex, and Disease Subtype : A Scleroderma Patient-Centered Intervention Network (SPIN) Cohort Study
enthalten in:
Arthritis care & research
| 2023
von
Xu, M.
|
Harel, D.
|
Carrier, M.
| +97
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8
Randomized controlled trial of an internet-based self-guided hand exercise program to improve hand function in people with systemic sclerosis : the Scleroderma Patient-centered Intervention Network Hand Exercise Program (SPIN-HAND) trial
enthalten in:
Trials
| 2022
von
Kwakkenbos, L.
|
Carrier, M.
|
Welling, J.
| +113
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9
Effects of a support group leader education program jointly developed by health professionals and patients on peer leader self-efficacy among leaders of scleroderma support groups : a two-arm parallel partially nested randomised controlled trial
enthalten in:
Orphanet journal of rare diseases
| 2022
von
Thombs, B.
|
Levis, B.
|
Carrier, M.
| +28
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10
Effects of a support group leader education program jointly developed by health professionals and patients on peer leader self-efficacy among leaders of scleroderma support groups: a two-arm parallel partially nested randomised controlled trial
enthalten in:
Orphanet journal of rare diseases
| 2022
von
Thombs, B.
|
Levis, B.
|
Carrier, M.
| +19
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11
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7
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4
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2020
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