Suchergebnisse - "Murrell, Dedee F"

PubPharm (22)

1

"Quality of Life in Epidermolysis Bullosa" and "Epidermolysis Bullosa Burden of Disease" : Italian translation, cultural adaptation, and pilot testing of two disease-specific questionnaires

enthalten in: Italian journal of pediatrics | 2024

von Hachem, M. | Diociaiuti, A. | Zambruno, G. | +7

2

“Quality of Life in Epidermolysis Bullosa” and “Epidermolysis Bullosa Burden of Disease”: Italian translation, cultural adaptation, and pilot testing of two disease-specific questionnaires

enthalten in: The Italian journal of pediatrics | 2024

von Hachem, M. | Diociaiuti, A. | Zambruno, G. | +7

3

Translation, cultural adaptation and validation of the German Quality of Life in Epidermolysis Bullosa (QOLEB) questionnaire

enthalten in: Journal of health psychology | 2024

von Salamon, G. | Strobl, S. | Field-Werners, U. | +3

4

A prospective short-term study to evaluate methodologies for the assessment of disease extent, impact, and wound evolution in patients with dystrophic epidermolysis bullosa

enthalten in: Orphanet journal of rare diseases | 2022

von Paller, A. | Pope, E. | Rudin, D. | +6

5

A prospective short-term study to evaluate methodologies for the assessment of disease extent, impact, and wound evolution in patients with dystrophic epidermolysis bullosa

enthalten in: Orphanet journal of rare diseases | 2022

von Paller, A. | Pope, E. | Rudin, D. | +5

6

A prospective short-term study to evaluate methodologies for the assessment of disease extent, impact, and wound evolution in patients with dystrophic epidermolysis bullosa

enthalten in: Orphanet journal of rare diseases | 2022

von Paller, A. | Pope, E. | Rudin, D. | +5

7

A global, cross-sectional survey of patient-reported outcomes, disease burden, and quality of life in epidermolysis bullosa simplex

enthalten in: Orphanet journal of rare diseases | 2022

von So, J. | Fulchand, S. | Wong, C. | +8

8

A global, cross-sectional survey of patient-reported outcomes, disease burden, and quality of life in epidermolysis bullosa simplex

enthalten in: Orphanet journal of rare diseases | 2022

von So, J. | Fulchand, S. | Wong, C. | +8

9

A global, cross-sectional survey of patient-reported outcomes, disease burden, and quality of life in epidermolysis bullosa simplex

enthalten in: Orphanet journal of rare diseases | 2022

von So, J. | Fulchand, S. | Wong, C. | +8

10

Assessing the quality of life in the families of patients with epidermolysis bullosa : The mothers as main caregivers

enthalten in: International journal of women's dermatology | 2021

von Chogani, F. | Parvizi, M. | Murrell, D. | +1