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PubPharm (15)
1
Patient engagement in research : lessons learned from CAPTURE ALS, a longitudinal observational ALS study
enthalten in:
Amyotrophic lateral sclerosis & frontotemporal degeneration
| 2024
von
Genuis, S.
|
Luth, W.
|
Magnussen, C.
| +4
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2
Assessing the Measurement Properties of the Self-Administered Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R) : A Rasch Analysis
enthalten in:
Physical therapy
| 2023
von
Mehdipour, A.
|
Teshler, L.
|
Dal Bello-Haas, V.
| +8
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3
Asynchronous online focus groups for research with people living with amyotrophic lateral sclerosis and family caregivers : usefulness, acceptability and lessons learned
enthalten in:
BMC medical research methodology
| 2023
von
Genuis, S.
|
Luth, W.
|
Weber, G.
| +2
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4
Asynchronous online focus groups for research with people living with amyotrophic lateral sclerosis and family caregivers: usefulness, acceptability and lessons learned
enthalten in:
BMC medical research methodology
| 2023
von
Genuis, S.
|
Luth, W.
|
Weber, G.
| +2
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5
What do people affected by amyotrophic lateral sclerosis want from health communications? Evidence from the ALS Talk Project
enthalten in:
Muscle & nerve
| 2023
von
Genuis, S.
|
Luth, W.
|
Bubela, T.
| +1
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6
Amyotrophic lateral sclerosis (ALS) health charities are central to ALS care : perspectives of Canadians affected by ALS
enthalten in:
Amyotrophic lateral sclerosis & frontotemporal degeneration
| 2023
von
Ahmad, M.
|
Genuis, S.
|
Luth, W.
| +2
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7
What do people affected by amyotrophic lateral sclerosis want from health communications? Evidence from the ALS Talk Project
enthalten in:
Muscle & Nerve
| 2023
von
Genuis, S.
|
Luth, W.
|
Bubela, T.
| +1
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8
Refining items for a preference-based, amyotrophic lateral sclerosis specific, health-related quality of life scale
enthalten in:
Amyotrophic lateral sclerosis & frontotemporal degeneration
| 2022
von
Van Damme, J.
|
Kuspinar, A.
|
Johnston, W.
| +9
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9
Covid-19 threat and coping : application of protection motivation theory to the pandemic experiences of people affected by amyotrophic lateral sclerosis
enthalten in:
BMC neurology
| 2022
von
Genuis, S.
|
Luth, W.
|
Bubela, T.
| +1
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10
Covid-19 threat and coping: application of protection motivation theory to the pandemic experiences of people affected by amyotrophic lateral sclerosis
enthalten in:
BMC neurology
| 2022
von
Genuis, S.
|
Luth, W.
|
Bubela, T.
| +1
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Amyotrophic lateral sclerosis & frontotemporal ...
3
BMC neurology
2
BMC medical research methodology
1
Frontiers in neurology
1
Journal of law and the biosciences
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Muscle & Nerve
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Muscle & nerve
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The Canadian journal of neurological sciences. ...
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Thema
10
Journal Article
6
Amyotrophic lateral sclerosis
5
Family caregivers
5
Patients
4
Research Support, Non-U.S. Gov't
3
Covid 19
3
Emergency planning
3
Pandemics
3
Protective motivation theory
3
health communication
2
Online focus groups
2
Research design
2
Research participation
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amyotrophic lateral sclerosis (ALS)
1
ALS care
1
Advisory committees
1
Amyotrophic Lateral Sclerosis
1
Amyotrophic lateral sclerosis (ALS)
1
Caregivers
1
Disease Management
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Erscheinungszeitraum
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2020-
2
2010-2019
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