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PubPharm (42)
1
A new national survey of centers for cognitive disorders and dementias in Italy
enthalten in:
Neurological sciences : official journal of the Italian Neurological Society and of the Italian Society of Clinical Neurophysiology
| 2024
von
Bacigalupo, I.
|
Giaquinto, F.
|
Salvi, E.
| +107
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2
The Italian fund for Alzheimer's and other dementias : strategies and objectives to face the dementia challenge
enthalten in:
Annali dell'Istituto superiore di sanita
| 2022
von
Ancidoni, A.
|
Sciancalepore, F.
|
Bacigalupo, I.
| +116
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3
Decentralized clinical trials (DCTs) : A few ethical considerations
enthalten in:
Frontiers in public health
| 2022
von
Petrini, C.
|
Mannelli, C.
|
Riva, L.
| +2
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4
Organ Transplantation From Nonstandard Risk Donors : Midway Between Rigid and Flexible Rules
enthalten in:
Transplantation proceedings
| 2019
von
Petrini, C.
|
Trapani, S.
|
Riva, L.
| +6
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5
Is There a Right to Get a Right Diagnosis Whenever Possible? Ethical and Social Issues in Dealing with Undiagnosed Rare Diseases
enthalten in:
Preprints.org
| 2018
von
Gainotti, S.
|
Mascalzoni, D.
|
Bros Facer, V.
| +5
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6
Meeting Patients' Right to the Correct Diagnosis : Ongoing International Initiatives on Undiagnosed Rare Diseases and Ethical and Social Issues
enthalten in:
International journal of environmental research and public health
| 2018
von
Gainotti, S.
|
Mascalzoni, D.
|
Bros-Facer, V.
| +5
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7
Recommendations for Improving the Quality of Rare Disease Registries
enthalten in:
International journal of environmental research and public health
| 2018
von
Kodra, Y.
|
Weinbach, J.
|
Posada-de-la-Paz, M.
| +26
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8
The RD-Connect Registry & Biobank Finder : a tool for sharing aggregated data and metadata among rare disease researchers
enthalten in:
European journal of human genetics : EJHG
| 2018
von
Gainotti, S.
|
Torreri, P.
|
Wang, C.
| +18
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9
The Role of Solidarity(-ies) in Rare Diseases Research
enthalten in:
Advances in experimental medicine and biology
| 2017
von
Mascalzoni, D.
|
Petrini, C.
|
Taruscio, D.
| +1
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10
'You should at least ask'. The expectations, hopes and fears of rare disease patients on large-scale data and biomaterial sharing for genomics research
enthalten in:
European journal of human genetics : EJHG
| 2016
von
McCormack, P.
|
Kole, A.
|
Gainotti, S.
| +4
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