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PubPharm (28)
1
Translational Justice in Human Gene Editing : Bringing End User Engagement and Policy Together
enthalten in:
The American journal of bioethics : AJOB
| 2023
von
Allyse, M.
|
Meagher, K.
|
Michie, M.
| +8
CommentOn: Am J Bioeth. 2023 Jul;23(7):9-16. - PMID 37204137
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2
An Eye Toward the Future : Montefiore Hospital Provides Expanded Newborn Screening Options
enthalten in:
Genetic testing and molecular biomarkers
| 2021
von
Ly, A.
|
Terry, S.
|
Bonhomme, N.
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3
The Value of Cognitive Pretesting : Improving Validity and Revealing Blind Spots through the Development of a Newborn Screening Parent Experiences Survey
enthalten in:
International journal of neonatal screening
| 2021
von
Simon, N.
|
Atkins, A.
|
Miller, B.
| +2
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4
Digital peer-to-peer information seeking and sharing : Opportunities for education and collaboration in newborn screening
enthalten in:
American journal of medical genetics. Part C, Seminars in medical genetics
| 2021
von
Miller, B.
|
Goldenberg, A.
|
Bonhomme, N.
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5
Digital peer‐to‐peer information seeking and sharing : Opportunities for education and collaboration in newborn screening
enthalten in:
American Journal of Medical Genetics Part C: Seminars in Medical Genetics
| 2021
von
Miller, B.
|
Goldenberg, A.
|
Bonhomme, N.
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6
Assessing the newborn screening education needs of families living in medically underserved areas
enthalten in:
Journal of genetic counseling
| 2020
von
Evans, A.
|
Lynch, M.
|
Johnson, M.
| +1
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7
Strategies for Improving Access to Hereditary Cancer Testing : Recommendations from Stakeholders
enthalten in:
Genetics in medicine : official journal of the American College of Medical Genetics
| 2019
von
Ready, K.
|
Johansen Taber, K.
|
Bonhomme, N.
| +1
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8
A Newborn Screening Education Best Practices Framework : Development and Adoption
enthalten in:
International journal of neonatal screening
| 2019
von
Evans, A.
|
LeBlanc, K.
|
Bonhomme, N.
| +8
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9
Including ELSI research questions in newborn screening pilot studies
enthalten in:
Genetics in medicine : official journal of the American College of Medical Genetics
| 2019
von
Goldenberg, A.
|
Lloyd-Puryear, M.
|
Brosco, J.
| +16
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10
Newborn Screening and Health Communications
enthalten in:
Genetic testing and molecular biomarkers
| 2018
von
Evans, A.
|
Bonhomme, N.
|
Goodman, A.
| +1
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Zeitschriftentitel
7
Genetic testing and molecular biomarkers
3
Genetics in medicine : official journal of the ...
2
Human genomics
2
International journal of neonatal screening
2
Journal of obstetric, gynecologic and neonatal ...
2
Pediatrics
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1
American Journal of Medical Genetics Part C: Se...
1
American journal of medical genetics. Part C, S...
1
Journal of genetic counseling
1
Journal of nursing scholarship
1
Journal of nursing scholarship : an official pu...
1
Journal of women's health (2002)
1
The American journal of bioethics : AJOB
1
The Hastings Center report
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Thema
20
Journal Article
5
newborn screening
4
Review
3
Ethics
3
Privacy
2
Citizen science
2
Direct-to-consumer
2
Genomic data
2
Individual access
2
Law
2
Patient engagement
2
Raw genomic data
2
Research Support, N.I.H., Extramural
2
Research Support, Non-U.S. Gov't
2
Research Support, U.S. Gov't, P.H.S.
2
Whole genome sequencing
2
attitudes
2
data sharing
2
film
2
genetics
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Erscheinungszeitraum
6
2020-
22
2010-2019
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Englisch
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