Molecular Integration in Neurological Diagnosis (MIND) Parkinson's Disease Inception Cohort Study Protocol
Abstract This is an inception cohort study protocol to enroll people with Parkinson's disease into a biobanking protocol at the clinic-wide level collecting clinical information and blood for future research use. The informed consent process includes optional recontact for future research studies, access to the medical record, and use of samples for future studies. Blood products (plasma and genomic DNA) are banked for future use. Clinical data is obtained through a questionnaire. Each visit lasts between 10-20 min between a clinical research coordinator and patient at the time of their return visit to the medical office. The strength of this protocol is the broad research enrollment across a whole clinic target for recruitment, optional consents for future research and access to the medical record. Weakness include the time needed for enrollment and limited clinical information collected..
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Preprint| Erscheinungsjahr: |
2024 |
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| Erschienen: |
2024 |
| Enthalten in: |
ResearchSquare.com - (2024) vom: 03. Jan. Zur Gesamtaufnahme - year:2024 |
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| Sprache: |
Englisch |
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| Beteiligte Personen: |
Tropea, Thomas F [VerfasserIn] |
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| Links: |
Volltext [kostenfrei] |
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| Themen: |
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| doi: |
10.21203/rs.3.pex-2505/v1 |
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| funding: |
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| PPN (Katalog-ID): |
XRA042063159 |
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| 520 | |a Abstract This is an inception cohort study protocol to enroll people with Parkinson's disease into a biobanking protocol at the clinic-wide level collecting clinical information and blood for future research use. The informed consent process includes optional recontact for future research studies, access to the medical record, and use of samples for future studies. Blood products (plasma and genomic DNA) are banked for future use. Clinical data is obtained through a questionnaire. Each visit lasts between 10-20 min between a clinical research coordinator and patient at the time of their return visit to the medical office. The strength of this protocol is the broad research enrollment across a whole clinic target for recruitment, optional consents for future research and access to the medical record. Weakness include the time needed for enrollment and limited clinical information collected. | ||
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