The Hungarian version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)
Abstract The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient-reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Hungarian language. The reading comprehension of the questionnaire was tested in 10 JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the three Likert assumptions, floor/ceiling effects, internal consistency, Cronbach’s alpha, interscale correlations, test–retest reliability, and construct validity (convergent and discriminant validity). A total of 206 JIA patients (3.9% systemic, 41.3% oligoarticular, 28.2% RF-negative polyarthritis, 26.6% other categories) and 90 healthy children, were enrolled in two centres. The JAMAR components discriminated healthy subjects from JIA patients. All JAMAR components revealed good psychometric performances. In conclusion, the Hungarian version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research..
| Medienart: |
E-Artikel |
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| Erscheinungsjahr: |
2018 |
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| Erschienen: |
2018 |
| Enthalten in: |
Zur Gesamtaufnahme - volume:38 |
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| Enthalten in: |
Rheumatology international - 38(2018), Suppl 1 vom: Apr., Seite 243-250 |
| Sprache: |
Englisch |
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| Beteiligte Personen: |
Orbán, Ilonka [VerfasserIn] |
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| Links: |
Volltext [kostenfrei] |
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| Themen: |
Disease status |
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| Anmerkungen: |
© The Author(s) 2018 |
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| doi: |
10.1007/s00296-018-3955-y |
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| funding: |
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| Förderinstitution / Projekttitel: |
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SPR003874761 |
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| 520 | |a Abstract The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient-reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Hungarian language. The reading comprehension of the questionnaire was tested in 10 JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the three Likert assumptions, floor/ceiling effects, internal consistency, Cronbach’s alpha, interscale correlations, test–retest reliability, and construct validity (convergent and discriminant validity). A total of 206 JIA patients (3.9% systemic, 41.3% oligoarticular, 28.2% RF-negative polyarthritis, 26.6% other categories) and 90 healthy children, were enrolled in two centres. The JAMAR components discriminated healthy subjects from JIA patients. All JAMAR components revealed good psychometric performances. In conclusion, the Hungarian version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research. | ||
| 650 | 4 | |a Juvenile idiopathic arthritis |7 (dpeaa)DE-He213 | |
| 650 | 4 | |a Disease status |7 (dpeaa)DE-He213 | |
| 650 | 4 | |a Functional ability |7 (dpeaa)DE-He213 | |
| 650 | 4 | |a Health-related quality of life |7 (dpeaa)DE-He213 | |
| 650 | 4 | |a JAMAR |7 (dpeaa)DE-He213 | |
| 700 | 1 | |a Constantin, Tamás |4 aut | |
| 700 | 1 | |a Dérfalvi, Beáta |4 aut | |
| 700 | 1 | |a Sevcic, Krisztina |4 aut | |
| 700 | 1 | |a Garan, Diána |4 aut | |
| 700 | 1 | |a Káposzta, Rita |4 aut | |
| 700 | 1 | |a Poór, Gyula |4 aut | |
| 700 | 1 | |a Kiss, Emese |4 aut | |
| 700 | 1 | |a Ponyi, Andrea |4 aut | |
| 700 | 1 | |a Consolaro, Alessandro |4 aut | |
| 700 | 1 | |a Bovis, Francesca |4 aut | |
| 700 | 1 | |a Ruperto, Nicolino |4 aut | |
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