Promoting awareness of terminology related to unmet medical needs in context of rheumatic diseases in Japan: a systematic review for evaluating unmet medical needs

Abstract To optimize patient prognosis, patient needs, including unmet needs, should be adequately assessed. However, such needs are more challenging to report and, consequently, more likely to go unmet compared with the needs reported by physicians. We aimed to determine the appropriate direction of future research on unmet medical needs in rheumatic diseases in Japan by conducting a literature review. We searched PubMed and Web of Science using 23 terms linked to unmet medical needs for major rheumatic diseases in Japan. Further, we collected articles on health-related quality of life and investigated the scales used for assessment, as well as whether the terms “unmet needs” or “unmet medical needs” were used. We identified 949 papers on 10 diseases, including systemic lupus erythematosus, systemic sclerosis, dermatomyositis, juvenile idiopathic arthritis, adult-onset Still’s disease, antiphospholipid syndrome, mixed connective tissue disease, Takayasu arteritis, Sjögren’s syndrome, and Behçet’s disease; 25 of the 949 papers were selected for full-text review. Fifteen articles on five diseases were related to health-related quality of life. The term “unmet needs” was used in only one article. Six out of 15 studies used the 36-item short form survey, whereas the scales used in other studies differed. The optimal treatment plan determined by a physician may not necessarily align with the best interests of the patient. In clinical research, cross sectional and standardized indicators of health-related quality of life should be employed along with highly discretionary questionnaires to assess and optimize resource allocation in healthcare and simultaneously achieve patient-desired outcomes..

Medienart:

E-Artikel

Erscheinungsjahr:

2023

Erschienen:

2023

Enthalten in:

Zur Gesamtaufnahme - volume:43

Enthalten in:

Rheumatology international - 43(2023), 11 vom: 19. Aug., Seite 2021-2030

Sprache:

Englisch

Beteiligte Personen:

Yamazaki, Susumu [VerfasserIn]
Izawa, Kazushi [VerfasserIn]
Matsushita, Masakazu [VerfasserIn]
Moriichi, Akinori [VerfasserIn]
Kishida, Dai [VerfasserIn]
Yoshifuji, Hajime [VerfasserIn]
Yamaji, Ken [VerfasserIn]
Nishikomori, Ryuta [VerfasserIn]
Mori, Masaaki [VerfasserIn]
Miyamae, Takako [VerfasserIn]

Links:

Volltext [lizenzpflichtig]

BKL:

44.83$jRheumatologie$jOrthopädie

Themen:

Autoimmune diseases
Japan
Needs assessment
Prognosis
Rheumatology
Vasculitis

RVK:

RVK Klassifikation

Anmerkungen:

© The Author(s), under exclusive licence to Springer-Verlag GmbH Germany, part of Springer Nature 2023. Springer Nature or its licensor (e.g. a society or other partner) holds exclusive rights to this article under a publishing agreement with the author(s) or other rightsholder(s); author self-archiving of the accepted manuscript version of this article is solely governed by the terms of such publishing agreement and applicable law.

doi:

10.1007/s00296-023-05425-z

funding:

Förderinstitution / Projekttitel:

PPN (Katalog-ID):

OLC2145491996

Zugang & Verfügbarkeit




Zugehörige Publikationen/Bände

    Haven't found what you're looking for?