Importance of patient and public involvement in doctoral research involving people living with dementia

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BACKGROUND: There is increasing recognition of the need to include patients and the public in the research process. There is extensive literature about patient and public involvement (PPI) in research, but fewer articles report on PPI in doctoral research.

AIM: To reflect on establishing an advisory group for a doctoral study, exploring the opportunities and challenges associated with including patients with dementia in the research process.

DISCUSSION: The authors discuss the practicalities of establishing an advisory group, the challenges of being a novice researcher, long-term commitment to PPI, the overall approach to PPI and ethical considerations.

CONCLUSION: Establishing an advisory group for a doctoral study can facilitate mutual learning and enhance the study's quality.

IMPLICATIONS FOR PRACTICE: Achieving high-quality PPI in health and social care research can ultimately improve its quality and relevance. An important aspect of the doctoral journey is developing knowledge and skills to facilitate PPI as part of a researcher's apprenticeship.

Medienart:

E-Artikel

Erscheinungsjahr:

2024

Erschienen:

2024

Enthalten in:

Zur Gesamtaufnahme - year:2024

Enthalten in:

Nurse researcher - (2024) vom: 27. März

Sprache:

Englisch

Beteiligte Personen:

Smith, Cathryn [VerfasserIn]
Baillie, Jessica [VerfasserIn]
Gill, Paul [VerfasserIn]

Links:

Volltext

Themen:

Data collection
Dementia
Dementia awareness
Focus groups
Interviews
Journal Article
Neurology
Qualitative research
Research
Research methods
Study design
Study participation

Anmerkungen:

Date Revised 27.03.2024

published: Print-Electronic

Citation Status Publisher

doi:

10.7748/nr.2024.e1919

funding:

Förderinstitution / Projekttitel:

PPN (Katalog-ID):

NLM370221710