'We no longer experience the same pain' : a cross-sectional study assessing the impact of Heart and Sole Africa's podoconiosis prevention education program
© The Author(s) 2024. Published by Oxford University Press on behalf of Royal Society of Tropical Medicine and Hygiene..
BACKGROUND: Podoconiosis is a non-infectious neglected tropical disease caused by long-term exposure to irritant volcanic soils. It results in severe physical, psychological and financial consequences. Heart and Sole Africa (HASA) is a non-governmental, community-based organization providing management to podoconiosis patients in Rwanda. We sought to analyze the impact of their program on the lives of patients.
METHODS: Quantitative surveys recorded the participants' demographics, adherence to HASA's management recommendations and changes in quality of life (QOL). Qualitative questions were used to gather respondent perspectives on HASA programming.
RESULTS: We interviewed 127 patients from HASA's Musanze (n=47) and Burera (n=80) clinics. Almost all participants (98.4%) reported statistically significant (p<0.01) improvements in their QOL, and more than one-half (51.2%) had a favorable adherence score of >80%. Qualitative feedback identified specific challenges to adherence and recognition of program success in symptom management.
CONCLUSIONS: Our study demonstrated the value of community-based podoconiosis programming in improving the lives of patients. Practices such as regular feet washing, emollient application, shoe wearing and limb raising can result in a marked reduction of morbidity. Our findings support the argument for scaling up these management practices across Rwanda.
| Medienart: |
E-Artikel |
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| Erscheinungsjahr: |
2024 |
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| Erschienen: |
2024 |
| Enthalten in: |
Zur Gesamtaufnahme - year:2024 |
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| Enthalten in: |
Transactions of the Royal Society of Tropical Medicine and Hygiene - (2024) vom: 11. März |
| Sprache: |
Englisch |
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| Beteiligte Personen: |
Gebreselassie, Agazi Fitsum [VerfasserIn] |
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| Links: |
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| Themen: |
Heart and Sole Africa |
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| Anmerkungen: |
Date Revised 11.03.2024 published: Print-Electronic Citation Status Publisher |
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| doi: |
10.1093/trstmh/trae007 |
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| funding: |
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| Förderinstitution / Projekttitel: |
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| PPN (Katalog-ID): |
NLM369552172 |
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| 500 | |a Date Revised 11.03.2024 | ||
| 500 | |a published: Print-Electronic | ||
| 500 | |a Citation Status Publisher | ||
| 520 | |a © The Author(s) 2024. Published by Oxford University Press on behalf of Royal Society of Tropical Medicine and Hygiene. | ||
| 520 | |a BACKGROUND: Podoconiosis is a non-infectious neglected tropical disease caused by long-term exposure to irritant volcanic soils. It results in severe physical, psychological and financial consequences. Heart and Sole Africa (HASA) is a non-governmental, community-based organization providing management to podoconiosis patients in Rwanda. We sought to analyze the impact of their program on the lives of patients | ||
| 520 | |a METHODS: Quantitative surveys recorded the participants' demographics, adherence to HASA's management recommendations and changes in quality of life (QOL). Qualitative questions were used to gather respondent perspectives on HASA programming | ||
| 520 | |a RESULTS: We interviewed 127 patients from HASA's Musanze (n=47) and Burera (n=80) clinics. Almost all participants (98.4%) reported statistically significant (p<0.01) improvements in their QOL, and more than one-half (51.2%) had a favorable adherence score of >80%. Qualitative feedback identified specific challenges to adherence and recognition of program success in symptom management | ||
| 520 | |a CONCLUSIONS: Our study demonstrated the value of community-based podoconiosis programming in improving the lives of patients. Practices such as regular feet washing, emollient application, shoe wearing and limb raising can result in a marked reduction of morbidity. Our findings support the argument for scaling up these management practices across Rwanda | ||
| 650 | 4 | |a Journal Article | |
| 650 | 4 | |a Heart and Sole Africa | |
| 650 | 4 | |a Rwanda | |
| 650 | 4 | |a lymphedema | |
| 650 | 4 | |a neglected tropical disease | |
| 650 | 4 | |a podoconiosis | |
| 650 | 4 | |a quality of life | |
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| 700 | 1 | |a Kallon, Ahamed |e verfasserin |4 aut | |
| 700 | 1 | |a Mkondo, George |e verfasserin |4 aut | |
| 700 | 1 | |a Huston, Tonya |e verfasserin |4 aut | |
| 700 | 1 | |a Schurer, Janna M |e verfasserin |4 aut | |
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