Security and Privacy of Online Record Access : A Survey of Adolescents' Views and Experiences in Sweden
Copyright © 2024 Society for Adolescent Health and Medicine. Published by Elsevier Inc. All rights reserved..
PURPOSE: Ensuring security of online health records and patients' perceptions of security are concerns in adolescent healthcare. Little is known about adolescents' perceptions about healthcare's ability to protect online health records. This article explores adolescents' perspectives on security and privacy of their online health records, potential differences based on gender and health, attitudes to sharing information, and perceptions of what constitutes sensitive information.
METHODS: This study included a subset of items from a national online patient survey conducted in Sweden (January-February 2022), focusing on respondents aged 15-19 years. Gender and health status differences were calculated using the Kruskal-Wallis test.
RESULTS: Of 218 adolescent respondents (77.1% female), a minority had security and privacy concerns. A notable proportion (41.3%) wished to control who could see their records, and those who reported better perceived health were more likely to want to manage access to their electronic health record (H = 13.569, p = .009). Most had not experienced unauthorized access to their records (75.2%) and had never shared health information on other online applications (85.8%). More than half (56.0%) perceived some information as sensitive, where mental health was the most common (76.0%). Most felt that reading their notes improved their trust for their healthcare professional (65.6%) and supported better communication with healthcare professionals (66.5%).
DISCUSSION: In this national survey, adolescents generally reported few concerns about patient portals. Findings emphasize the need for security and privacy protection and to empower adolescents with greater control over access to their health information housed in electronic health record systems.
| Medienart: |
E-Artikel |
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| Erscheinungsjahr: |
2024 |
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| Erschienen: |
2024 |
| Enthalten in: |
Zur Gesamtaufnahme - year:2024 |
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| Enthalten in: |
The Journal of adolescent health : official publication of the Society for Adolescent Medicine - (2024) vom: 12. Feb. |
| Sprache: |
Englisch |
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| Beteiligte Personen: |
Hagström, Josefin [VerfasserIn] |
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| Links: |
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| Themen: |
Adolescent health |
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| Anmerkungen: |
Date Revised 13.02.2024 published: Print-Electronic Citation Status Publisher |
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| doi: |
10.1016/j.jadohealth.2023.12.027 |
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| funding: |
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| Förderinstitution / Projekttitel: |
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| PPN (Katalog-ID): |
NLM368394344 |
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| 245 | 1 | 0 | |a Security and Privacy of Online Record Access |b A Survey of Adolescents' Views and Experiences in Sweden |
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| 500 | |a published: Print-Electronic | ||
| 500 | |a Citation Status Publisher | ||
| 520 | |a Copyright © 2024 Society for Adolescent Health and Medicine. Published by Elsevier Inc. All rights reserved. | ||
| 520 | |a PURPOSE: Ensuring security of online health records and patients' perceptions of security are concerns in adolescent healthcare. Little is known about adolescents' perceptions about healthcare's ability to protect online health records. This article explores adolescents' perspectives on security and privacy of their online health records, potential differences based on gender and health, attitudes to sharing information, and perceptions of what constitutes sensitive information | ||
| 520 | |a METHODS: This study included a subset of items from a national online patient survey conducted in Sweden (January-February 2022), focusing on respondents aged 15-19 years. Gender and health status differences were calculated using the Kruskal-Wallis test | ||
| 520 | |a RESULTS: Of 218 adolescent respondents (77.1% female), a minority had security and privacy concerns. A notable proportion (41.3%) wished to control who could see their records, and those who reported better perceived health were more likely to want to manage access to their electronic health record (H = 13.569, p = .009). Most had not experienced unauthorized access to their records (75.2%) and had never shared health information on other online applications (85.8%). More than half (56.0%) perceived some information as sensitive, where mental health was the most common (76.0%). Most felt that reading their notes improved their trust for their healthcare professional (65.6%) and supported better communication with healthcare professionals (66.5%) | ||
| 520 | |a DISCUSSION: In this national survey, adolescents generally reported few concerns about patient portals. Findings emphasize the need for security and privacy protection and to empower adolescents with greater control over access to their health information housed in electronic health record systems | ||
| 650 | 4 | |a Journal Article | |
| 650 | 4 | |a Adolescent health | |
| 650 | 4 | |a Adolescents | |
| 650 | 4 | |a Electronic health record (EHR) | |
| 650 | 4 | |a National survey | |
| 650 | 4 | |a Patient portal | |
| 650 | 4 | |a Security, Privacy, Patient accessible electronic health record (PAEHR) | |
| 650 | 4 | |a Usability | |
| 650 | 4 | |a eHealth | |
| 700 | 1 | |a Åhlfeldt, Rose-Mharie |e verfasserin |4 aut | |
| 700 | 1 | |a Blease, Charlotte |e verfasserin |4 aut | |
| 700 | 1 | |a Cajander, Åsa |e verfasserin |4 aut | |
| 700 | 1 | |a Rexhepi, Hanife |e verfasserin |4 aut | |
| 700 | 1 | |a Moll, Jonas |e verfasserin |4 aut | |
| 700 | 1 | |a Kane, Bridget |e verfasserin |4 aut | |
| 700 | 1 | |a Scandurra, Isabella |e verfasserin |4 aut | |
| 700 | 1 | |a Hägglund, Maria |e verfasserin |4 aut | |
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