OMERACT 2023 Systemic Lupus Erythematosus Special Interest Group : Winnowing and Binning Preliminary Candidate Domains for the Core Outcome Set

Copyright © 2024. Published by Elsevier Inc..

BACKGROUND: The Outcome Measures in Rheumatology (OMERACT) Systemic Lupus Erythematosus (SLE) Working Group held a Special Interest Group (SIG) at the OMERACT 2023 conference in Colorado Springs where SLE collaborators reviewed domain sub-themes generated through qualitative research and literature review.

OBJECTIVE: The objective of the SIG and the subsequent meetings of the SLE Working Group was to begin the winnowing and binning of candidate domain sub-themes into a preliminary list of candidate domains that will proceed to the consensus Delphi exercise for the SLE COS.

METHODS: Four breakout groups at the SLE SIG in Colorado Springs winnowed and binned 132 domain sub-themes into candidate domains, which was continued with a series of virtual meetings by an advisory group of SLE patient research partners (PRPs), members of the OMERACT SLE Working Group Steering Committee, and other collaborators.

RESULTS: The 132 domain sub-themes were reduced to a preliminary list of 20 candidate domains based on their clinical and research relevance for clinical trials and research studies.

CONCLUSION: A meaningful and substantial winnowing and binning of candidate domains for the SLE COS was achieved resulting in a preliminary list of 20 candidate domains.

Medienart:

E-Artikel

Erscheinungsjahr:

2024

Erschienen:

2024

Enthalten in:

Zur Gesamtaufnahme - volume:65

Enthalten in:

Seminars in arthritis and rheumatism - 65(2024) vom: 28. März, Seite 152380

Sprache:

Englisch

Beteiligte Personen:

Nielsen, Wils [VerfasserIn]
Strand, Vibeke [VerfasserIn]
Simon, Lee S [VerfasserIn]
Parodis, Ioannis [VerfasserIn]
Kim, Alfred H J [VerfasserIn]
Desai, Maya [VerfasserIn]
Enman, Yvonne [VerfasserIn]
Wallace, Daniel [VerfasserIn]
Chaichian, Yashaar [VerfasserIn]
Navarra, Sandra [VerfasserIn]
Aranow, Cynthia [VerfasserIn]
MacKay, Meggan [VerfasserIn]
Trotter, Kimberly [VerfasserIn]
Tayer-Shifman, Oshrat E [VerfasserIn]
Duarte-Garcia, Ali [VerfasserIn]
Shan Tam, Lai [VerfasserIn]
Ugarte-Gil, Manuel F [VerfasserIn]
PonsEstel, Guillermo J [VerfasserIn]
Reynolds, John A [VerfasserIn]
Nikpour, Mandana [VerfasserIn]
Hoi, Alberta [VerfasserIn]
Romero-Diaz, Juanita [VerfasserIn]
Papachristos, Danaë [VerfasserIn]
Aggarwal, Amita [VerfasserIn]
Mok, Chi Chiu [VerfasserIn]
Fujio, Keishi [VerfasserIn]
Ramsey-Goldman, Rosalind [VerfasserIn]
Howe, Aaron [VerfasserIn]
Kia, Behdin Nowrouzi [VerfasserIn]
Bonilla, Dennisse [VerfasserIn]
Thumboo, Julian [VerfasserIn]
Mosca, Marta [VerfasserIn]
Aringer, Martin [VerfasserIn]
Johnson, Sindhu R [VerfasserIn]
Drucker, Aaron M [VerfasserIn]
Morand, Eric [VerfasserIn]
Bruce, Ian [VerfasserIn]
Touma, Zahi [VerfasserIn]
OMERACT SLE Working Group [VerfasserIn]

Links:

Volltext

Themen:

Core Outcome Set
Journal Article
OMERACT
Systemic Lupus Erythematosus

Anmerkungen:

Date Completed 22.03.2024

Date Revised 22.03.2024

published: Print-Electronic

Citation Status MEDLINE

doi:

10.1016/j.semarthrit.2024.152380

funding:

Förderinstitution / Projekttitel:

PPN (Katalog-ID):

NLM367718812