Emotional impacts of excursions on parents of children with medical complexity
© 2023 Japan Pediatric Society..
BACKGROUND: Parents of children with medical complexity (CMC) have extra child-raising responsibilities because of the time commitments necessary for care, and their social participation is often compromised. Experiencing leisure excursions with such children may be a solution to some of these problems but the first-hand experience of excursions in regard to their psychological impact on the caregivers of CMC remains to be appraised.
METHODS: Semi-structured interviews were conducted, via video conference, with eight informal and eight formal caregivers of CMC who attended an excursion to Tokyo Disney Land (TDL). We investigated the psychological changes that they had experienced through the excursion, performing inductive thematic analysis.
RESULTS: Three themes were identified among parents and five were identified among medical professionals. Themes reported by the parents were: Increased trust in the public and society (Theme 1); confidence for other challenges (Theme 2), and connection with other parents in the non-medical settings (Theme 3). Themes reported by medical professionals were: Expanding the initiative to other CMC (Theme 1); feeling bonded with other caregivers within the working group (Theme 2); information exchange across different working groups (Theme 3), positive responses from CMC (Theme 4); families' confidence to go out (Theme 5).
CONCLUSIONS: This study showed that the excursion to TDL led to positive psychological changes in both medical professionals and parents of CMC, enhancing trust, connection, and confidence. The promising results of this study suggest a need for further research about the impact of an excursion on caregivers of CMC.
| Medienart: |
E-Artikel |
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| Erscheinungsjahr: |
2023 |
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| Erschienen: |
2023 |
| Enthalten in: |
Zur Gesamtaufnahme - volume:65 |
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| Enthalten in: |
Pediatrics international : official journal of the Japan Pediatric Society - 65(2023), 1 vom: 01. Jan., Seite e15683 |
| Sprache: |
Englisch |
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| Beteiligte Personen: |
Kosaka, Makoto [VerfasserIn] |
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| Links: |
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| Anmerkungen: |
Date Completed 17.11.2023 Date Revised 28.12.2023 published: Print Citation Status MEDLINE |
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| doi: |
10.1111/ped.15683 |
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| funding: |
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| Förderinstitution / Projekttitel: |
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| PPN (Katalog-ID): |
NLM364606460 |
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| 245 | 1 | 0 | |a Emotional impacts of excursions on parents of children with medical complexity |
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| 500 | |a Date Revised 28.12.2023 | ||
| 500 | |a published: Print | ||
| 500 | |a Citation Status MEDLINE | ||
| 520 | |a © 2023 Japan Pediatric Society. | ||
| 520 | |a BACKGROUND: Parents of children with medical complexity (CMC) have extra child-raising responsibilities because of the time commitments necessary for care, and their social participation is often compromised. Experiencing leisure excursions with such children may be a solution to some of these problems but the first-hand experience of excursions in regard to their psychological impact on the caregivers of CMC remains to be appraised | ||
| 520 | |a METHODS: Semi-structured interviews were conducted, via video conference, with eight informal and eight formal caregivers of CMC who attended an excursion to Tokyo Disney Land (TDL). We investigated the psychological changes that they had experienced through the excursion, performing inductive thematic analysis | ||
| 520 | |a RESULTS: Three themes were identified among parents and five were identified among medical professionals. Themes reported by the parents were: Increased trust in the public and society (Theme 1); confidence for other challenges (Theme 2), and connection with other parents in the non-medical settings (Theme 3). Themes reported by medical professionals were: Expanding the initiative to other CMC (Theme 1); feeling bonded with other caregivers within the working group (Theme 2); information exchange across different working groups (Theme 3), positive responses from CMC (Theme 4); families' confidence to go out (Theme 5) | ||
| 520 | |a CONCLUSIONS: This study showed that the excursion to TDL led to positive psychological changes in both medical professionals and parents of CMC, enhancing trust, connection, and confidence. The promising results of this study suggest a need for further research about the impact of an excursion on caregivers of CMC | ||
| 650 | 4 | |a Journal Article | |
| 650 | 4 | |a child with medical complexity | |
| 650 | 4 | |a excursion | |
| 650 | 4 | |a parent | |
| 700 | 1 | |a Kotera, Yasuhiro |e verfasserin |4 aut | |
| 700 | 1 | |a Masunaga, Hidehisa |e verfasserin |4 aut | |
| 700 | 1 | |a Bhandari, Divya |e verfasserin |4 aut | |
| 700 | 1 | |a Miyatake, Hirotomo |e verfasserin |4 aut | |
| 700 | 1 | |a Nishikawa, Yoshitaka |e verfasserin |4 aut | |
| 700 | 1 | |a Komori, Naomi |e verfasserin |4 aut | |
| 700 | 1 | |a Ozaki, Akihiko |e verfasserin |4 aut | |
| 700 | 1 | |a Beniya, Hiroyuki |e verfasserin |4 aut | |
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