Determining Construct Validity of a Patient-Reported Outcome Measure for Birthmarks on the Face and Body

Background: The FACE-Q Craniofacial module includes a scale that measures how bothered an individual is by the appearance of a birthmark on the face or body. Objective: To determine if the Birthmark scale measuring appearance of the birthmark has evidence of construct validity among children and young adults, aged 8-29 years old, with a birthmark on the face or body. Methods: Participants were recruited as part of the field test of the FACE-Q Craniofacial module. Construct validity of the Birthmark scale was examined using a priori hypotheses testing. Results: Two hundred seventy participants were included, who were predominantly female (60.4%) and had a facial birthmark (71.5%). The Birthmark scale correlated (p ≤ 0.01) with scale scores for Face, Appearance Distress, Psychological, School, and Social. Scores for participants with more "noticeable" birthmarks were (p ≤ 0.01) associated with worse Birthmark scale scores. Conclusion: The findings support that the Birthmark scale can be used to measure the patient's perspective of the appearance of their birthmark, providing a means for clinicians to incorporate the patient's view in shared decision-making and research.

Medienart:

E-Artikel

Erscheinungsjahr:

2023

Erschienen:

2023

Enthalten in:

Zur Gesamtaufnahme - year:2023

Enthalten in:

Facial plastic surgery & aesthetic medicine - (2023) vom: 09. Nov.

Sprache:

Englisch

Beteiligte Personen:

Rosales, Hannah Rose [VerfasserIn]
Gallo, Lucas [VerfasserIn]
Rae, Charlene [VerfasserIn]
Wong-Riff, Karen W Y [VerfasserIn]
Pusic, Andrea [VerfasserIn]
Klassen, Anne F [VerfasserIn]

Links:

Volltext

Themen:

Journal Article

Anmerkungen:

Date Revised 09.11.2023

published: Print-Electronic

Citation Status Publisher

doi:

10.1089/fpsam.2023.0151

funding:

Förderinstitution / Projekttitel:

PPN (Katalog-ID):

NLM364353252