Patient perspectives on recall period and response options in patient-reported outcome measures for chronic rhinosinusitis symptomatology : An international multi-centered study

© 2023 The Authors. International Forum of Allergy & Rhinology published by Wiley Periodicals LLC on behalf of American Academy of Otolaryngic Allergy and American Rhinologic Society..

BACKGROUND: Existing patient-reported outcome measures (PROMs) for chronic rhinosinusitis (CRS) use a variety of recall periods and response scales to assess CRS symptom burden. Global perspectives of CRS patients regarding optimal recall periods and response scales for CRS PROMs are unknown.

METHODS: This was a multi-center, cross-sectional study recruiting 461 CRS patients from sites across the United States, Saudi Arabia, New Zealand, and Austria. Participants chose which CRS symptom recall period (1 day, 2 weeks, 1 month, >1 month) was most reflective of their current disease state and upon which to best base treatment recommendations (including surgery). Participants also chose which of six response scales (one visual analogue scale and five Likert scales ranging from four to eight items) was easiest to use, understand, and preferred.

RESULTS: A plurality of participants (40.0%) felt their CRS symptoms' current state was best reflected by a 1-month recall period. However, most patients (56.9%) preferred treatment recommendations to be determined by symptoms experienced over a >1 month period. The four- and five-item Likert scales were the easiest to understand (26.0% and 25.4%, respectively) and use (23.4% and 26.7%, respectively). The five-item (26.4% rating it most preferred and 70.9% rating it preferred) and four-item Likert (22.3% rating it most preferred and 56.4% rating it preferred) response scales were most preferred.

CONCLUSION: Future PROMs for CRS should consider assessment of symptoms over a 1-month period and use a four- or five-item Likert response scale to reflect global patient preferences. These findings also inform interpretation of current CRS PROMs.

Medienart:

E-Artikel

Erscheinungsjahr:

2024

Erschienen:

2024

Enthalten in:

Zur Gesamtaufnahme - volume:14

Enthalten in:

International forum of allergy & rhinology - 14(2024), 5 vom: 07. Apr., Seite 898-908

Sprache:

Englisch

Beteiligte Personen:

Sedaghat, Ahmad R [VerfasserIn]
Derbarsegian, Armo [VerfasserIn]
Yu, Victor T [VerfasserIn]
Alsayed, Ahmed [VerfasserIn]
Bitner, Benjamin F [VerfasserIn]
Yeom, Brian [VerfasserIn]
Liu, David T [VerfasserIn]
Schneider, Sven [VerfasserIn]
Adams, Sarah M [VerfasserIn]
Houssein, Firas A [VerfasserIn]
Walters, Zoe A [VerfasserIn]
Tripathi, Siddhant [VerfasserIn]
Walker, Victoria L [VerfasserIn]
Singerman, Kyle W [VerfasserIn]
Meier, Josh C [VerfasserIn]
Kim, Raymond [VerfasserIn]
Kuan, Edward C [VerfasserIn]
Alsaleh, Saad [VerfasserIn]
Phillips, Katie M [VerfasserIn]

Links:

Volltext

Themen:

Chronic rhinosinusitis
Design
Journal Article
Multicenter Study
PROM
Patient‐reported outcome
Recall
Research Support, Non-U.S. Gov't
Response
Scale

Anmerkungen:

Date Completed 25.04.2024

Date Revised 25.04.2024

published: Print-Electronic

Citation Status MEDLINE

doi:

10.1002/alr.23280

funding:

Förderinstitution / Projekttitel:

PPN (Katalog-ID):

NLM362819327