Sociodemographic Disparities in Craniosynostosis : A Systematic Review

OBJECTIVE: Given the consequences of delayed treatment and diagnosis of craniosynostosis, this study reviews the literature on sociodemographic risk factors and disparities associated with delayed craniosynostosis treatment.

DESIGN: A systematic review was conducted according to the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines. A literature search of PubMed/Medline and Embase was performed by two independent reviewers. Included studies discussed craniosynostosis health disparities. Demographic characteristics and outcomes were analyzed.

SETTING: Not applicable.

PATIENTS: Patients with craniosynostosis.

INTERVENTIONS: Standard surgical intervention for craniosynostosis.

RESULTS: Our literature search yielded 273 studies, of which 18 were included for analysis. Included studies represented data from 31 256 U.S. patients with craniosynostosis. Sixty percent of patients (n = 16 510) were White, 13.8% were Hispanic/Latino, 6.2% were Black/African American, 1.3% were Asian, 0.3% were American Indian or Alaska Native, and 0.1% were Native Hawaiian or Pacific Islander. Average age at surgery was 6.36 months for White patients, 10.63 months for Black patients, and 9.18 months for Hispanic patients. Minority racial and/or ethnic status was a risk factor for delayed presentation, and increased incidence of open surgery, complication rates, hospital charges, operative time, anesthesia duration, and hospital length of stay. Government-funded health insurance was associated with delayed intervention and increased complications.

CONCLUSIONS: Minority craniosynostosis patients experience delays in intervention and increased complication rates. Our findings highlight the importance of expedited and equitable referrals, screenings, and treatment, and the need for a standardized approach to investigating longitudinal demographic and outcomes data in this population.

Medienart:

E-Artikel

Erscheinungsjahr:

2023

Erschienen:

2023

Enthalten in:

Zur Gesamtaufnahme - year:2023

Enthalten in:

The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association - (2023) vom: 10. Sept., Seite 10556656231199832

Sprache:

Englisch

Beteiligte Personen:

Blum, Jessica D [VerfasserIn]
Ng, Jinggang J [VerfasserIn]
Craig, Jasmine [VerfasserIn]
Smith, Rachel [VerfasserIn]
Kota, Anchith [VerfasserIn]
Moura, Steven P [VerfasserIn]
Ford, Avery D [VerfasserIn]
Kalluri, Manasa H [VerfasserIn]
Garland, Catharine [VerfasserIn]
Cho, Daniel Y [VerfasserIn]

Links:

Volltext

Themen:

Counseling
Craniofacial surgery
Craniosynostosis
Developmental delay
Ethics/health policies
Health policies
Journal Article
Outcomes
Systematic review

Anmerkungen:

Date Revised 11.09.2023

published: Print-Electronic

Citation Status Publisher

doi:

10.1177/10556656231199832

funding:

Förderinstitution / Projekttitel:

PPN (Katalog-ID):

NLM361887620