Sociodemographic Disparities in Craniosynostosis : A Systematic Review
OBJECTIVE: Given the consequences of delayed treatment and diagnosis of craniosynostosis, this study reviews the literature on sociodemographic risk factors and disparities associated with delayed craniosynostosis treatment.
DESIGN: A systematic review was conducted according to the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines. A literature search of PubMed/Medline and Embase was performed by two independent reviewers. Included studies discussed craniosynostosis health disparities. Demographic characteristics and outcomes were analyzed.
SETTING: Not applicable.
PATIENTS: Patients with craniosynostosis.
INTERVENTIONS: Standard surgical intervention for craniosynostosis.
RESULTS: Our literature search yielded 273 studies, of which 18 were included for analysis. Included studies represented data from 31 256 U.S. patients with craniosynostosis. Sixty percent of patients (n = 16 510) were White, 13.8% were Hispanic/Latino, 6.2% were Black/African American, 1.3% were Asian, 0.3% were American Indian or Alaska Native, and 0.1% were Native Hawaiian or Pacific Islander. Average age at surgery was 6.36 months for White patients, 10.63 months for Black patients, and 9.18 months for Hispanic patients. Minority racial and/or ethnic status was a risk factor for delayed presentation, and increased incidence of open surgery, complication rates, hospital charges, operative time, anesthesia duration, and hospital length of stay. Government-funded health insurance was associated with delayed intervention and increased complications.
CONCLUSIONS: Minority craniosynostosis patients experience delays in intervention and increased complication rates. Our findings highlight the importance of expedited and equitable referrals, screenings, and treatment, and the need for a standardized approach to investigating longitudinal demographic and outcomes data in this population.
Medienart: |
E-Artikel |
---|
Erscheinungsjahr: |
2023 |
---|---|
Erschienen: |
2023 |
Enthalten in: |
Zur Gesamtaufnahme - year:2023 |
---|---|
Enthalten in: |
The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association - (2023) vom: 10. Sept., Seite 10556656231199832 |
Sprache: |
Englisch |
---|
Beteiligte Personen: |
Blum, Jessica D [VerfasserIn] |
---|
Links: |
---|
Themen: |
Counseling |
---|
Anmerkungen: |
Date Revised 11.09.2023 published: Print-Electronic Citation Status Publisher |
---|
doi: |
10.1177/10556656231199832 |
---|
funding: |
|
---|---|
Förderinstitution / Projekttitel: |
|
PPN (Katalog-ID): |
NLM361887620 |
---|
LEADER | 01000naa a22002652 4500 | ||
---|---|---|---|
001 | NLM361887620 | ||
003 | DE-627 | ||
005 | 20231226090110.0 | ||
007 | cr uuu---uuuuu | ||
008 | 231226s2023 xx |||||o 00| ||eng c | ||
024 | 7 | |a 10.1177/10556656231199832 |2 doi | |
028 | 5 | 2 | |a pubmed24n1206.xml |
035 | |a (DE-627)NLM361887620 | ||
035 | |a (NLM)37691284 | ||
040 | |a DE-627 |b ger |c DE-627 |e rakwb | ||
041 | |a eng | ||
100 | 1 | |a Blum, Jessica D |e verfasserin |4 aut | |
245 | 1 | 0 | |a Sociodemographic Disparities in Craniosynostosis |b A Systematic Review |
264 | 1 | |c 2023 | |
336 | |a Text |b txt |2 rdacontent | ||
337 | |a ƒaComputermedien |b c |2 rdamedia | ||
338 | |a ƒa Online-Ressource |b cr |2 rdacarrier | ||
500 | |a Date Revised 11.09.2023 | ||
500 | |a published: Print-Electronic | ||
500 | |a Citation Status Publisher | ||
520 | |a OBJECTIVE: Given the consequences of delayed treatment and diagnosis of craniosynostosis, this study reviews the literature on sociodemographic risk factors and disparities associated with delayed craniosynostosis treatment | ||
520 | |a DESIGN: A systematic review was conducted according to the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines. A literature search of PubMed/Medline and Embase was performed by two independent reviewers. Included studies discussed craniosynostosis health disparities. Demographic characteristics and outcomes were analyzed | ||
520 | |a SETTING: Not applicable | ||
520 | |a PATIENTS: Patients with craniosynostosis | ||
520 | |a INTERVENTIONS: Standard surgical intervention for craniosynostosis | ||
520 | |a RESULTS: Our literature search yielded 273 studies, of which 18 were included for analysis. Included studies represented data from 31 256 U.S. patients with craniosynostosis. Sixty percent of patients (n = 16 510) were White, 13.8% were Hispanic/Latino, 6.2% were Black/African American, 1.3% were Asian, 0.3% were American Indian or Alaska Native, and 0.1% were Native Hawaiian or Pacific Islander. Average age at surgery was 6.36 months for White patients, 10.63 months for Black patients, and 9.18 months for Hispanic patients. Minority racial and/or ethnic status was a risk factor for delayed presentation, and increased incidence of open surgery, complication rates, hospital charges, operative time, anesthesia duration, and hospital length of stay. Government-funded health insurance was associated with delayed intervention and increased complications | ||
520 | |a CONCLUSIONS: Minority craniosynostosis patients experience delays in intervention and increased complication rates. Our findings highlight the importance of expedited and equitable referrals, screenings, and treatment, and the need for a standardized approach to investigating longitudinal demographic and outcomes data in this population | ||
650 | 4 | |a Journal Article | |
650 | 4 | |a counseling | |
650 | 4 | |a craniofacial surgery | |
650 | 4 | |a craniosynostosis | |
650 | 4 | |a developmental delay | |
650 | 4 | |a ethics/health policies | |
650 | 4 | |a health policies | |
650 | 4 | |a outcomes | |
650 | 4 | |a systematic review | |
700 | 1 | |a Ng, Jinggang J |e verfasserin |4 aut | |
700 | 1 | |a Craig, Jasmine |e verfasserin |4 aut | |
700 | 1 | |a Smith, Rachel |e verfasserin |4 aut | |
700 | 1 | |a Kota, Anchith |e verfasserin |4 aut | |
700 | 1 | |a Moura, Steven P |e verfasserin |4 aut | |
700 | 1 | |a Ford, Avery D |e verfasserin |4 aut | |
700 | 1 | |a Kalluri, Manasa H |e verfasserin |4 aut | |
700 | 1 | |a Garland, Catharine |e verfasserin |4 aut | |
700 | 1 | |a Cho, Daniel Y |e verfasserin |4 aut | |
773 | 0 | 8 | |i Enthalten in |t The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association |d 1997 |g (2023) vom: 10. Sept., Seite 10556656231199832 |w (DE-627)NLM012888125 |x 1545-1569 |7 nnns |
773 | 1 | 8 | |g year:2023 |g day:10 |g month:09 |g pages:10556656231199832 |
856 | 4 | 0 | |u http://dx.doi.org/10.1177/10556656231199832 |3 Volltext |
912 | |a GBV_USEFLAG_A | ||
912 | |a GBV_NLM | ||
951 | |a AR | ||
952 | |j 2023 |b 10 |c 09 |h 10556656231199832 |