Patients' acceptance of outcome and experience measurements during hospitalisation for COPD exacerbations : a CICERO Clinical Research Collaboration-European Lung Foundation online patient survey
Copyright ©The authors 2023..
Background: The lack of standardised outcome assessments during hospitalisation and follow-up for acute COPD exacerbations has hampered scientific progress and clinical proficiency. The objective of the present study was to evaluate patients' acceptance of selected outcome and experience measurements during hospitalisations for COPD exacerbations and follow-up.
Methods: An online survey was held amongst COPD patients in France, Belgium, The Netherlands, Germany and the UK. The European Lung Foundation COPD Patient Advisory Group was involved in the conceptualisation, development and dissemination of the survey. The survey was complementary to a previously obtained expert consensus. We assessed patients' views and acceptance of selected patient-reported outcomes or experiences and corresponding measurement instruments (for dyspnoea, frequent productive cough, health status and hospitalisation experience), and of selected clinical investigations (blood draw, pulmonary function test, 6-min walk test, chest computed tomography, echocardiography).
Findings: 200 patients completed the survey. All selected outcomes and experiences were deemed important, and acceptance of their methods of assessment was high. The modified Medical Research Council scale and a numerical rating scale to address dyspnoea, the COPD Assessment Test for quality of life and frequent productive cough, and the Hospital Consumer Assessment of Healthcare Providers and Systems for hospital experiences were the instruments preferred by patients. Consensus on importance of blood draw and spirometry was higher compared with the other investigations.
Interpretation: The survey results endorse the use of the selected outcome and experience measurements during hospitalisations for COPD exacerbations. They can be used to optimise standardised and patient-centred care and facilitate multicentric data collection.
| Medienart: |
E-Artikel |
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| Erscheinungsjahr: |
2023 |
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| Erschienen: |
2023 |
| Enthalten in: |
Zur Gesamtaufnahme - volume:9 |
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| Enthalten in: |
ERJ open research - 9(2023), 4 vom: 21. Juli |
| Sprache: |
Englisch |
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| Beteiligte Personen: |
Gyselinck, Iwein [VerfasserIn] |
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| Links: |
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| Anmerkungen: |
Date Revised 18.07.2023 published: Electronic-eCollection Citation Status PubMed-not-MEDLINE |
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| doi: |
10.1183/23120541.00148-2023 |
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| funding: |
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| Förderinstitution / Projekttitel: |
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| PPN (Katalog-ID): |
NLM359060153 |
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| 500 | |a Citation Status PubMed-not-MEDLINE | ||
| 520 | |a Copyright ©The authors 2023. | ||
| 520 | |a Background: The lack of standardised outcome assessments during hospitalisation and follow-up for acute COPD exacerbations has hampered scientific progress and clinical proficiency. The objective of the present study was to evaluate patients' acceptance of selected outcome and experience measurements during hospitalisations for COPD exacerbations and follow-up | ||
| 520 | |a Methods: An online survey was held amongst COPD patients in France, Belgium, The Netherlands, Germany and the UK. The European Lung Foundation COPD Patient Advisory Group was involved in the conceptualisation, development and dissemination of the survey. The survey was complementary to a previously obtained expert consensus. We assessed patients' views and acceptance of selected patient-reported outcomes or experiences and corresponding measurement instruments (for dyspnoea, frequent productive cough, health status and hospitalisation experience), and of selected clinical investigations (blood draw, pulmonary function test, 6-min walk test, chest computed tomography, echocardiography) | ||
| 520 | |a Findings: 200 patients completed the survey. All selected outcomes and experiences were deemed important, and acceptance of their methods of assessment was high. The modified Medical Research Council scale and a numerical rating scale to address dyspnoea, the COPD Assessment Test for quality of life and frequent productive cough, and the Hospital Consumer Assessment of Healthcare Providers and Systems for hospital experiences were the instruments preferred by patients. Consensus on importance of blood draw and spirometry was higher compared with the other investigations | ||
| 520 | |a Interpretation: The survey results endorse the use of the selected outcome and experience measurements during hospitalisations for COPD exacerbations. They can be used to optimise standardised and patient-centred care and facilitate multicentric data collection | ||
| 650 | 4 | |a Journal Article | |
| 700 | 1 | |a Ramakrishnan, Sanjay |e verfasserin |4 aut | |
| 700 | 1 | |a Vermeersch, Kristina |e verfasserin |4 aut | |
| 700 | 1 | |a Halner, Andreas |e verfasserin |4 aut | |
| 700 | 1 | |a Pott, Hendrik |e verfasserin |4 aut | |
| 700 | 1 | |a Dobbels, Fabienne |e verfasserin |4 aut | |
| 700 | 1 | |a Coleman, Courtney |e verfasserin |4 aut | |
| 700 | 1 | |a Collis, Philip |e verfasserin |4 aut | |
| 700 | 1 | |a Watz, Henrik |e verfasserin |4 aut | |
| 700 | 1 | |a Greulich, Timm |e verfasserin |4 aut | |
| 700 | 1 | |a Franssen, Frits M E |e verfasserin |4 aut | |
| 700 | 1 | |a Burgel, Pierre-Régis |e verfasserin |4 aut | |
| 700 | 1 | |a Bafadhel, Mona |e verfasserin |4 aut | |
| 700 | 1 | |a Janssens, Wim |e verfasserin |4 aut | |
| 700 | 0 | |a CICERO Consortium |e verfasserin |4 aut | |
| 700 | 0 | |a CICERO Clinical Research Collaboration members.Chairs: |e verfasserin |4 aut | |
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