The systemic challenges of non-palliative care professionals caring for end-of-life patients : A lived experience study

OBJECTIVES: The aims of this study are to identify the challenges faced by non-palliative care professionals (NPCPs) in caring for end-of-life patients; determine how these challenges interact with and influence each other systemically; and advance the theories and practices for supporting NPCPs in the provision of quality end-of-life care beyond the boundaries of palliative medicine.

METHODS: A constructivist phenomenological research design with an Interpretive-Systemic Framework of inquiry was adopted. Thirty-five physicians, 35 nurses, and 35 Medical Social Workers who play critical roles in caring for end-of-life patients and belonging to the 9 major medical disciplines of Cardiology, Geriatric, Intensive Care Medicine, Internal Medicine, Nephrology, Neurology, Oncology, Respiratory Medicine, and Surgery were recruited through purposive snowball sampling from 3 major public hospitals.

RESULTS: Framework analysis revealed 5 themes and 17 subthemes that illuminate the individual, relational, cultural, institutional, and structural challenges that NPCPs faced in rendering end-of-life care. These challenges influence each other within the health-care ecosystem, serving to perpetuate or heighten care obstacles.

SIGNIFICANCE OF RESULTS: This is the first known study exploring the systemic challenges of NPCPs spanning 9 major medical disciplines and encompassing 3 professional stakeholders responsible for the care for end-of-life patients, thus ensuring perspective inclusivity across the health-care system. Recommendations that consider the complexity of the interactions between these systemic challenges are presented in detail.

Medienart:

E-Artikel

Erscheinungsjahr:

2023

Erschienen:

2023

Enthalten in:

Zur Gesamtaufnahme - year:2023

Enthalten in:

Palliative & supportive care - (2023) vom: 18. Apr., Seite 1-7

Sprache:

Englisch

Beteiligte Personen:

Ho, Andy H Y [VerfasserIn]
Tan-Ho, Geraldine [VerfasserIn]
Low, Casuarine [VerfasserIn]
Chan, Ee Yuee [VerfasserIn]
Chan, Noreen [VerfasserIn]
Hum, Allyn [VerfasserIn]
Khemlani, Mansha Hari [VerfasserIn]
Low, James Alvin Yiew Hock [VerfasserIn]
Tan, Woan Shin [VerfasserIn]

Links:

Volltext

Themen:

End-of-life care
Journal Article
Lived experience
Non-palliative care professionals
Palliative medicine
Qualitative research

Anmerkungen:

Date Revised 18.04.2023

published: Print-Electronic

Citation Status Publisher

doi:

10.1017/S1478951523000330

funding:

Förderinstitution / Projekttitel:

PPN (Katalog-ID):

NLM355743388