Transition to adult care of young people with congenital heart disease : impact of a service on knowledge and self-care skills and correlates of a successful transition
© The Author(s) 2023. Published by Oxford University Press on behalf of the European Society of Cardiology..
AIMS: Less than one-third of adolescents with congenital heart disease (CHD) successfully transition to adult care, missing out on education of their cardiac condition, and risking loss to follow-up. We assessed the efficacy of our transition clinic on patient education and empowerment and identified correlates of successful transition.
METHODS AND RESULTS: Overall, 592 patients were seen at least once in our transition service between 2015 and 2022 (age 15.2 ± 1.8 years, 47.5% female). Most adolescents (53%) had moderate CHD, followed by simple (27.9%) and severe (19.1%) CHD. Learning disability (LD) was present in 18.9% and physical disability (PD) in 4.7%. In patients without LD, knowledge of their cardiac condition improved significantly from the first to the second visit (naming their condition: from 20 to 52.3%, P < 0.0001; describing: 14.4-42.7%, P < 0.0001; understanding: 26.1-60.7%, P < 0.0001), and from the second to the third (naming: 67.4%, P = 0.004, describing: 61.4%, P < 0.001, understanding: 71.1%, P = 0.02;). Patients with LD did not improve their disease knowledge over time (all P > 0.05). Treatment adherence and management involvement, self-reported anxiety, and dental care awareness did not change over time. Successful transition (attendance of ≥ 2 clinics) was achieved in 49.3%. Younger age at the first visit, simpler CHD, and absence of PD were associated with successful transition.
CONCLUSION: A transition service positively impacts on patient education and empowerment in most CHD adolescents transitioning to adult care. Strategies to promote a tailored support for patients with LD should be sought, and earlier engagement should be encouraged to minimize follow-up losses.
| Errataetall: |
CommentIn: Eur Heart J Qual Care Clin Outcomes. 2023 Jun 21;9(4):305-306. - PMID 37076772 |
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| Medienart: |
E-Artikel |
| Erscheinungsjahr: |
2023 |
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| Erschienen: |
2023 |
| Enthalten in: |
Zur Gesamtaufnahme - volume:9 |
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| Enthalten in: |
European heart journal. Quality of care & clinical outcomes - 9(2023), 4 vom: 21. Juni, Seite 351-357 |
| Sprache: |
Englisch |
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| Beteiligte Personen: |
Ricci, Piera [VerfasserIn] |
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| Links: |
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| Themen: |
Adolescent medicine |
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| Anmerkungen: |
Date Completed 23.06.2023 Date Revised 01.07.2023 published: Print CommentIn: Eur Heart J Qual Care Clin Outcomes. 2023 Jun 21;9(4):305-306. - PMID 37076772 Citation Status MEDLINE |
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| doi: |
10.1093/ehjqcco/qcad014 |
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| funding: |
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| Förderinstitution / Projekttitel: |
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| PPN (Katalog-ID): |
NLM352986050 |
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| 245 | 1 | 0 | |a Transition to adult care of young people with congenital heart disease |b impact of a service on knowledge and self-care skills and correlates of a successful transition |
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| 500 | |a published: Print | ||
| 500 | |a CommentIn: Eur Heart J Qual Care Clin Outcomes. 2023 Jun 21;9(4):305-306. - PMID 37076772 | ||
| 500 | |a Citation Status MEDLINE | ||
| 520 | |a © The Author(s) 2023. Published by Oxford University Press on behalf of the European Society of Cardiology. | ||
| 520 | |a AIMS: Less than one-third of adolescents with congenital heart disease (CHD) successfully transition to adult care, missing out on education of their cardiac condition, and risking loss to follow-up. We assessed the efficacy of our transition clinic on patient education and empowerment and identified correlates of successful transition | ||
| 520 | |a METHODS AND RESULTS: Overall, 592 patients were seen at least once in our transition service between 2015 and 2022 (age 15.2 ± 1.8 years, 47.5% female). Most adolescents (53%) had moderate CHD, followed by simple (27.9%) and severe (19.1%) CHD. Learning disability (LD) was present in 18.9% and physical disability (PD) in 4.7%. In patients without LD, knowledge of their cardiac condition improved significantly from the first to the second visit (naming their condition: from 20 to 52.3%, P < 0.0001; describing: 14.4-42.7%, P < 0.0001; understanding: 26.1-60.7%, P < 0.0001), and from the second to the third (naming: 67.4%, P = 0.004, describing: 61.4%, P < 0.001, understanding: 71.1%, P = 0.02;). Patients with LD did not improve their disease knowledge over time (all P > 0.05). Treatment adherence and management involvement, self-reported anxiety, and dental care awareness did not change over time. Successful transition (attendance of ≥ 2 clinics) was achieved in 49.3%. Younger age at the first visit, simpler CHD, and absence of PD were associated with successful transition | ||
| 520 | |a CONCLUSION: A transition service positively impacts on patient education and empowerment in most CHD adolescents transitioning to adult care. Strategies to promote a tailored support for patients with LD should be sought, and earlier engagement should be encouraged to minimize follow-up losses | ||
| 650 | 4 | |a Journal Article | |
| 650 | 4 | |a Adolescent medicine | |
| 650 | 4 | |a Congenital heart disease | |
| 650 | 4 | |a Education | |
| 650 | 4 | |a Learning disability | |
| 650 | 4 | |a Transition | |
| 700 | 1 | |a Dimopoulos, Konstantinos |e verfasserin |4 aut | |
| 700 | 1 | |a Bouchard, Melissa |e verfasserin |4 aut | |
| 700 | 1 | |a Zhiya, Cheryl Chong |e verfasserin |4 aut | |
| 700 | 1 | |a Castro Meira, Virginia |e verfasserin |4 aut | |
| 700 | 1 | |a Pool, Danielle |e verfasserin |4 aut | |
| 700 | 1 | |a Lambell, Michelle |e verfasserin |4 aut | |
| 700 | 1 | |a Rafiq, Isma |e verfasserin |4 aut | |
| 700 | 1 | |a Kempny, Aleksander |e verfasserin |4 aut | |
| 700 | 1 | |a Heng, Ee Ling |e verfasserin |4 aut | |
| 700 | 1 | |a Gatzoulis, Michael A |e verfasserin |4 aut | |
| 700 | 1 | |a Haidu, Loredana |e verfasserin |4 aut | |
| 700 | 1 | |a Constantine, Andrew |e verfasserin |4 aut | |
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