Patient Experiences in the Management of Inflammatory Bowel Disease : A Qualitative Study
© The Author(s) 2022. Published by Oxford University Press on behalf of the Canadian Association of Gastroenterology..
Background: Inflammatory bowel disease (IBD) can lead to substantial impairments of quality-of-life. Clinical guidelines and quality indicators aid physicians in practice but may not reflect the perspectives and experiences of patients with IBD. To address this, the objectives of this study were to understand patient experiences with IBD care and to explore priorities.
Methods: Based on a convenience sample of 36 participants, five focus groups were completed at four sites across Canada. Data were analyzed using a deductive thematic analysis approach to assess emergent themes and variability in participants' experiences.
Results: Our results are organized by themes of structure, process and outcomes to illustrate common issues with respect to how care is organized in the healthcare system, how patients receive and experience care and how patients perceive the outcomes of their care. Our results frame a health systems quality approach that signal needed improvements in access to care, the need for innovation with respect to virtual medicine, the potential expansion of multidisciplinary team-based care and the importance of addressing the psychosocial dimensions for patients with IBD and their caregivers in order to better deliver patient-centred care.
Conclusions: The issues identified have the potential to impact priority areas in the system, IBD care delivery, and how outcomes can be improved by focusing on 'lived experience' and patient-centred care. The differing values and perspectives of all those involved in caring for patients with IBD underscore the importance of good communication with patients, caregivers and family members, as well as staying responsive to evolving needs.
| Medienart: |
E-Artikel |
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| Erscheinungsjahr: |
2022 |
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| Erschienen: |
2022 |
| Enthalten in: |
Zur Gesamtaufnahme - volume:5 |
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| Enthalten in: |
Journal of the Canadian Association of Gastroenterology - 5(2022), 6 vom: 31. Dez., Seite 261-270 |
| Sprache: |
Englisch |
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| Beteiligte Personen: |
Mirza, Raza M [VerfasserIn] |
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| Links: |
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| Themen: |
Access |
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| Anmerkungen: |
Date Revised 06.12.2022 published: Electronic-eCollection Citation Status PubMed-not-MEDLINE |
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| doi: |
10.1093/jcag/gwac014 |
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| funding: |
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| Förderinstitution / Projekttitel: |
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| PPN (Katalog-ID): |
NLM349801061 |
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| 500 | |a Citation Status PubMed-not-MEDLINE | ||
| 520 | |a © The Author(s) 2022. Published by Oxford University Press on behalf of the Canadian Association of Gastroenterology. | ||
| 520 | |a Background: Inflammatory bowel disease (IBD) can lead to substantial impairments of quality-of-life. Clinical guidelines and quality indicators aid physicians in practice but may not reflect the perspectives and experiences of patients with IBD. To address this, the objectives of this study were to understand patient experiences with IBD care and to explore priorities | ||
| 520 | |a Methods: Based on a convenience sample of 36 participants, five focus groups were completed at four sites across Canada. Data were analyzed using a deductive thematic analysis approach to assess emergent themes and variability in participants' experiences | ||
| 520 | |a Results: Our results are organized by themes of structure, process and outcomes to illustrate common issues with respect to how care is organized in the healthcare system, how patients receive and experience care and how patients perceive the outcomes of their care. Our results frame a health systems quality approach that signal needed improvements in access to care, the need for innovation with respect to virtual medicine, the potential expansion of multidisciplinary team-based care and the importance of addressing the psychosocial dimensions for patients with IBD and their caregivers in order to better deliver patient-centred care | ||
| 520 | |a Conclusions: The issues identified have the potential to impact priority areas in the system, IBD care delivery, and how outcomes can be improved by focusing on 'lived experience' and patient-centred care. The differing values and perspectives of all those involved in caring for patients with IBD underscore the importance of good communication with patients, caregivers and family members, as well as staying responsive to evolving needs | ||
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| 700 | 1 | |a Sewitch, Maida J |e verfasserin |4 aut | |
| 700 | 1 | |a Heisler, Courtney |e verfasserin |4 aut | |
| 700 | 1 | |a McLeod, Justine |e verfasserin |4 aut | |
| 700 | 1 | |a Habashi, Peter |e verfasserin |4 aut | |
| 700 | 1 | |a MacDonald, Karen V |e verfasserin |4 aut | |
| 700 | 1 | |a Barker, Karis |e verfasserin |4 aut | |
| 700 | 1 | |a Nguyen, Geoffrey C |e verfasserin |4 aut | |
| 700 | 1 | |a Marshall, Deborah A |e verfasserin |4 aut | |
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