Uveitis Registries - A Digital Tool for Patient Care, Education, Research, and Collaboration
PURPOSE: Clinical registries are increasingly important in research and clinical advancement. This review explores and compares current uveitis registries and recommends future directions on how uveitis registries can complement one another for synergistic effect and benefit.
METHODS: From a systematic search, 861 citations were screened for longitudinal, non-interventional, and multicenter uveitis-specific registries. Additional registries were identified via consultations with uveitis experts. Characteristics of all registries were analyzed and compared.
RESULTS: Four registries were identified: Treatment Exit Options for Non-infectious Uveitis, AutoInflammatory Disease Alliance International Registry, Ocular Autoimmune Systemic Inflammatory Infectious Study, and Fight Uveitis Blindness!. Despite certain differences, these registries have the overarching goal of collecting large quantities of real-world, high-quality patient data to improve the understanding of uveitis.
CONCLUSION: The four uveitis registries share similar goals and collect clinical data from overlapping geographical regions. There is vast potential for collaboration, including data sharing to further augment datasets for analysis.
| Medienart: |
E-Artikel |
|---|
| Erscheinungsjahr: |
2023 |
|---|---|
| Erschienen: |
2023 |
| Enthalten in: |
Zur Gesamtaufnahme - volume:31 |
|---|---|
| Enthalten in: |
Ocular immunology and inflammation - 31(2023), 9 vom: 01. Nov., Seite 1859-1869 |
| Sprache: |
Englisch |
|---|
| Beteiligte Personen: |
Zhang, Zheting [VerfasserIn] |
|---|
| Links: |
|---|
| Themen: |
|---|
| Anmerkungen: |
Date Completed 27.10.2023 Date Revised 27.10.2023 published: Print-Electronic Citation Status MEDLINE |
|---|
| doi: |
10.1080/09273948.2022.2140062 |
|---|
| funding: |
|
|---|---|
| Förderinstitution / Projekttitel: |
|
| PPN (Katalog-ID): |
NLM348424566 |
|---|
| LEADER | 01000naa a22002652 4500 | ||
|---|---|---|---|
| 001 | NLM348424566 | ||
| 003 | DE-627 | ||
| 005 | 20231226040150.0 | ||
| 007 | cr uuu---uuuuu | ||
| 008 | 231226s2023 xx |||||o 00| ||eng c | ||
| 024 | 7 | |a 10.1080/09273948.2022.2140062 |2 doi | |
| 028 | 5 | 2 | |a pubmed24n1161.xml |
| 035 | |a (DE-627)NLM348424566 | ||
| 035 | |a (NLM)36328530 | ||
| 040 | |a DE-627 |b ger |c DE-627 |e rakwb | ||
| 041 | |a eng | ||
| 100 | 1 | |a Zhang, Zheting |e verfasserin |4 aut | |
| 245 | 1 | 0 | |a Uveitis Registries - A Digital Tool for Patient Care, Education, Research, and Collaboration |
| 264 | 1 | |c 2023 | |
| 336 | |a Text |b txt |2 rdacontent | ||
| 337 | |a ƒaComputermedien |b c |2 rdamedia | ||
| 338 | |a ƒa Online-Ressource |b cr |2 rdacarrier | ||
| 500 | |a Date Completed 27.10.2023 | ||
| 500 | |a Date Revised 27.10.2023 | ||
| 500 | |a published: Print-Electronic | ||
| 500 | |a Citation Status MEDLINE | ||
| 520 | |a PURPOSE: Clinical registries are increasingly important in research and clinical advancement. This review explores and compares current uveitis registries and recommends future directions on how uveitis registries can complement one another for synergistic effect and benefit | ||
| 520 | |a METHODS: From a systematic search, 861 citations were screened for longitudinal, non-interventional, and multicenter uveitis-specific registries. Additional registries were identified via consultations with uveitis experts. Characteristics of all registries were analyzed and compared | ||
| 520 | |a RESULTS: Four registries were identified: Treatment Exit Options for Non-infectious Uveitis, AutoInflammatory Disease Alliance International Registry, Ocular Autoimmune Systemic Inflammatory Infectious Study, and Fight Uveitis Blindness!. Despite certain differences, these registries have the overarching goal of collecting large quantities of real-world, high-quality patient data to improve the understanding of uveitis | ||
| 520 | |a CONCLUSION: The four uveitis registries share similar goals and collect clinical data from overlapping geographical regions. There is vast potential for collaboration, including data sharing to further augment datasets for analysis | ||
| 650 | 4 | |a Journal Article | |
| 650 | 4 | |a Review | |
| 650 | 4 | |a AIDA | |
| 650 | 4 | |a FUB | |
| 650 | 4 | |a OASIS | |
| 650 | 4 | |a TOFU | |
| 650 | 4 | |a registry | |
| 650 | 4 | |a uveitis | |
| 700 | 1 | |a Ng Ming Sheng, Sean |e verfasserin |4 aut | |
| 700 | 1 | |a Kempen, John H |e verfasserin |4 aut | |
| 700 | 1 | |a Fabiani, Claudia |e verfasserin |4 aut | |
| 700 | 1 | |a Arora, Atul |e verfasserin |4 aut | |
| 700 | 1 | |a Gupta, Vishali |e verfasserin |4 aut | |
| 700 | 1 | |a Tsui, Edmund |e verfasserin |4 aut | |
| 700 | 1 | |a Cimino, Luca |e verfasserin |4 aut | |
| 700 | 1 | |a Symes, Richard J |e verfasserin |4 aut | |
| 700 | 1 | |a Dell, Jennifer |e verfasserin |4 aut | |
| 700 | 1 | |a Finger, Robert P |e verfasserin |4 aut | |
| 700 | 1 | |a Heinz, Carsten |e verfasserin |4 aut | |
| 700 | 1 | |a Agrawal, Rupesh |e verfasserin |4 aut | |
| 773 | 0 | 8 | |i Enthalten in |t Ocular immunology and inflammation |d 1993 |g 31(2023), 9 vom: 01. Nov., Seite 1859-1869 |w (DE-627)NLM091014069 |x 1744-5078 |7 nnns |
| 773 | 1 | 8 | |g volume:31 |g year:2023 |g number:9 |g day:01 |g month:11 |g pages:1859-1869 |
| 856 | 4 | 0 | |u http://dx.doi.org/10.1080/09273948.2022.2140062 |3 Volltext |
| 912 | |a GBV_USEFLAG_A | ||
| 912 | |a GBV_NLM | ||
| 951 | |a AR | ||
| 952 | |d 31 |j 2023 |e 9 |b 01 |c 11 |h 1859-1869 | ||