Barriers and Expectations for Patients in Post-Osteoporotic Fracture Care in France : The EFFEL Study
Copyright © 2021 International Society for Pharmacoeconomics and Outcomes Research, Inc. Published by Elsevier Inc. All rights reserved..
OBJECTIVES: This study aimed to quantify the relative importance of barriers to better secondary prevention of osteoporotic fractures and of care expectations expressed by patients with osteoporotic fractures in France.
METHODS: A qualitative exploration of potential barriers to care and expectations was undertaken through a systematic literature review and in-depth patients interviews. A list of 21 barriers and 21 expectations was identified. These were presented to 324 subjects with osteoporotic fractures, identified in a representative sample of the French population, in the form of best-worst scaling questionnaires. Patients rated the relative importance of the attributes, and arithmetic mean importance scores were calculated and ranked. A Bayesian hierarchical model was also performed to generate a relative importance score. Latent class analysis was performed to identify potential subgroups of patients with different response profiles.
RESULTS: A total of 7 barriers were rated as the most important, relating to awareness of osteoporosis and coordination of care. The highest-ranked barrier, "my fracture is not related to osteoporosis," was significantly more important than all the others (mean importance score 0.45; 95% confidence interval 0.33-0.56). A similar ranking of attributes was obtained with both the arithmetic and the Bayesian approach. For expectations, no clear hierarchy of attributes was identified. Latent class analysis discriminated 3 classes of respondents with significant differences in response profiles (the educated environmentalists, the unaware, and the victims of the system).
CONCLUSIONS: Better quality of care of osteoporosis and effective secondary fracture prevention will require improvements in patient education, training of healthcare professionals, and coordination of care.
| Medienart: |
E-Artikel |
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| Erscheinungsjahr: |
2022 |
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| Erschienen: |
2022 |
| Enthalten in: |
Zur Gesamtaufnahme - volume:25 |
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| Enthalten in: |
Value in health : the journal of the International Society for Pharmacoeconomics and Outcomes Research - 25(2022), 4 vom: 01. Apr., Seite 571-581 |
| Sprache: |
Englisch |
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| Beteiligte Personen: |
Launois, Robert [VerfasserIn] |
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| Links: |
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| Anmerkungen: |
Date Completed 05.04.2022 Date Revised 17.05.2022 published: Print-Electronic Citation Status MEDLINE |
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| doi: |
10.1016/j.jval.2021.10.005 |
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| funding: |
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| Förderinstitution / Projekttitel: |
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| PPN (Katalog-ID): |
NLM338952020 |
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| 245 | 1 | 0 | |a Barriers and Expectations for Patients in Post-Osteoporotic Fracture Care in France |b The EFFEL Study |
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| 500 | |a Date Revised 17.05.2022 | ||
| 500 | |a published: Print-Electronic | ||
| 500 | |a Citation Status MEDLINE | ||
| 520 | |a Copyright © 2021 International Society for Pharmacoeconomics and Outcomes Research, Inc. Published by Elsevier Inc. All rights reserved. | ||
| 520 | |a OBJECTIVES: This study aimed to quantify the relative importance of barriers to better secondary prevention of osteoporotic fractures and of care expectations expressed by patients with osteoporotic fractures in France | ||
| 520 | |a METHODS: A qualitative exploration of potential barriers to care and expectations was undertaken through a systematic literature review and in-depth patients interviews. A list of 21 barriers and 21 expectations was identified. These were presented to 324 subjects with osteoporotic fractures, identified in a representative sample of the French population, in the form of best-worst scaling questionnaires. Patients rated the relative importance of the attributes, and arithmetic mean importance scores were calculated and ranked. A Bayesian hierarchical model was also performed to generate a relative importance score. Latent class analysis was performed to identify potential subgroups of patients with different response profiles | ||
| 520 | |a RESULTS: A total of 7 barriers were rated as the most important, relating to awareness of osteoporosis and coordination of care. The highest-ranked barrier, "my fracture is not related to osteoporosis," was significantly more important than all the others (mean importance score 0.45; 95% confidence interval 0.33-0.56). A similar ranking of attributes was obtained with both the arithmetic and the Bayesian approach. For expectations, no clear hierarchy of attributes was identified. Latent class analysis discriminated 3 classes of respondents with significant differences in response profiles (the educated environmentalists, the unaware, and the victims of the system) | ||
| 520 | |a CONCLUSIONS: Better quality of care of osteoporosis and effective secondary fracture prevention will require improvements in patient education, training of healthcare professionals, and coordination of care | ||
| 650 | 4 | |a Journal Article | |
| 650 | 4 | |a Systematic Review | |
| 650 | 4 | |a Research Support, Non-U.S. Gov't | |
| 650 | 4 | |a attribute identification | |
| 650 | 4 | |a best-worst scaling | |
| 650 | 4 | |a fracture | |
| 650 | 4 | |a latent classes analysis | |
| 650 | 4 | |a osteoporosis | |
| 650 | 4 | |a preference elicitation methods | |
| 650 | 4 | |a secondary prevention | |
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| 700 | 1 | |a Benamouzig, Daniel |e verfasserin |4 aut | |
| 700 | 1 | |a Velpry, Livia |e verfasserin |4 aut | |
| 700 | 1 | |a Briot, Karine |e verfasserin |4 aut | |
| 700 | 1 | |a Alliot, Françoise |e verfasserin |4 aut | |
| 700 | 1 | |a Perrin, Laure |e verfasserin |4 aut | |
| 700 | 1 | |a Grange, Laurent |e verfasserin |4 aut | |
| 700 | 1 | |a Sellami, Rahma |e verfasserin |4 aut | |
| 700 | 1 | |a Touboul, Chantal |e verfasserin |4 aut | |
| 700 | 1 | |a Joubert, Jean-Michel |e verfasserin |4 aut | |
| 700 | 1 | |a Roux, Christian |e verfasserin |4 aut | |
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