Prevalence and predictive factors of strain among caregivers of people with disability : results from R-Care community survey, Kerala, India
PURPOSE: Caregivers of people with disability experience difficulties in a variety of care domains. Understanding the predictive factors of caregiver strain is important in developing and implementing evidence-based intervention to reduce the difficulties experienced by the carers.
METHODS: The current study is a cross sectional comprehensive one-phase survey conducted in randomly selected sub-districts (taluks) of the Ernakulam district in Kerala. Primary caregivers (n = 851) for persons with different kinds of disability were identified with the help of ASHAs (Accredited Social Health Activities) from the selected geographical locations and were interviewed in a house-to-house survey after obtaining written informed consent. Validated tools measuring caregiver strain, financial burden, access to services and wellbeing were used to study the population.
RESULTS: Majority of the caregivers were females (77.3%) and spouses (35.2%). Of the caregivers 27% reported high levels of caregiver strain. The major factors associated with caregiver strain were female gender (B = 1.379, p = 0.000), financial issues (B = 0.105, p = 0.000), the general health of caregivers (B = 0.467, p = 0.000) and issues relating to employment (B = 0.956, p = 0.000) and the availability of government welfare services (B = 1.138, p = 0.000).
CONCLUSION: High caregiver burden and strain is experienced by almost a third of people caring for a person with a disability. Comprehensive interventions to reduce caregiver strain should be developed.Implications for rehabilitationThe rehabilitation sector needs to be made aware of the high levels of caregiver strain (especially in carers who were female, unemployed, have health issues and lack formal support).To improve wellbeing for people with disability we firstly need to promote social inclusion and support schemes for caregiver.Co-designed systems are needed to assist carers to access formal and informal support resources, and increase social connectedness.
| Medienart: |
E-Artikel |
|---|
| Erscheinungsjahr: |
2022 |
|---|---|
| Erschienen: |
2022 |
| Enthalten in: |
Zur Gesamtaufnahme - volume:44 |
|---|---|
| Enthalten in: |
Disability and rehabilitation - 44(2022), 21 vom: 26. Okt., Seite 6333-6339 |
| Sprache: |
Englisch |
|---|
| Beteiligte Personen: |
Madavanakadu, Saju [VerfasserIn] |
|---|
| Links: |
|---|
| Themen: |
Barriers to services |
|---|
| Anmerkungen: |
Date Completed 21.10.2022 Date Revised 20.12.2022 published: Print-Electronic Citation Status MEDLINE |
|---|
| doi: |
10.1080/09638288.2021.1965231 |
|---|
| funding: |
|
|---|---|
| Förderinstitution / Projekttitel: |
|
| PPN (Katalog-ID): |
NLM330031112 |
|---|
| LEADER | 01000naa a22002652 4500 | ||
|---|---|---|---|
| 001 | NLM330031112 | ||
| 003 | DE-627 | ||
| 005 | 20231225210421.0 | ||
| 007 | cr uuu---uuuuu | ||
| 008 | 231225s2022 xx |||||o 00| ||eng c | ||
| 024 | 7 | |a 10.1080/09638288.2021.1965231 |2 doi | |
| 028 | 5 | 2 | |a pubmed24n1100.xml |
| 035 | |a (DE-627)NLM330031112 | ||
| 035 | |a (NLM)34460345 | ||
| 040 | |a DE-627 |b ger |c DE-627 |e rakwb | ||
| 041 | |a eng | ||
| 100 | 1 | |a Madavanakadu, Saju |e verfasserin |4 aut | |
| 245 | 1 | 0 | |a Prevalence and predictive factors of strain among caregivers of people with disability |b results from R-Care community survey, Kerala, India |
| 264 | 1 | |c 2022 | |
| 336 | |a Text |b txt |2 rdacontent | ||
| 337 | |a ƒaComputermedien |b c |2 rdamedia | ||
| 338 | |a ƒa Online-Ressource |b cr |2 rdacarrier | ||
| 500 | |a Date Completed 21.10.2022 | ||
| 500 | |a Date Revised 20.12.2022 | ||
| 500 | |a published: Print-Electronic | ||
| 500 | |a Citation Status MEDLINE | ||
| 520 | |a PURPOSE: Caregivers of people with disability experience difficulties in a variety of care domains. Understanding the predictive factors of caregiver strain is important in developing and implementing evidence-based intervention to reduce the difficulties experienced by the carers | ||
| 520 | |a METHODS: The current study is a cross sectional comprehensive one-phase survey conducted in randomly selected sub-districts (taluks) of the Ernakulam district in Kerala. Primary caregivers (n = 851) for persons with different kinds of disability were identified with the help of ASHAs (Accredited Social Health Activities) from the selected geographical locations and were interviewed in a house-to-house survey after obtaining written informed consent. Validated tools measuring caregiver strain, financial burden, access to services and wellbeing were used to study the population | ||
| 520 | |a RESULTS: Majority of the caregivers were females (77.3%) and spouses (35.2%). Of the caregivers 27% reported high levels of caregiver strain. The major factors associated with caregiver strain were female gender (B = 1.379, p = 0.000), financial issues (B = 0.105, p = 0.000), the general health of caregivers (B = 0.467, p = 0.000) and issues relating to employment (B = 0.956, p = 0.000) and the availability of government welfare services (B = 1.138, p = 0.000) | ||
| 520 | |a CONCLUSION: High caregiver burden and strain is experienced by almost a third of people caring for a person with a disability. Comprehensive interventions to reduce caregiver strain should be developed.Implications for rehabilitationThe rehabilitation sector needs to be made aware of the high levels of caregiver strain (especially in carers who were female, unemployed, have health issues and lack formal support).To improve wellbeing for people with disability we firstly need to promote social inclusion and support schemes for caregiver.Co-designed systems are needed to assist carers to access formal and informal support resources, and increase social connectedness | ||
| 650 | 4 | |a Journal Article | |
| 650 | 4 | |a Research Support, Non-U.S. Gov't | |
| 650 | 4 | |a Caregivers | |
| 650 | 4 | |a Kerala | |
| 650 | 4 | |a barriers to services | |
| 650 | 4 | |a caregiver strain | |
| 650 | 4 | |a expressed needs | |
| 650 | 4 | |a person with disability | |
| 700 | 1 | |a Grills, Nathan John |e verfasserin |4 aut | |
| 700 | 1 | |a Scaria, Lorane |e verfasserin |4 aut | |
| 700 | 1 | |a Benny, Anuja Maria |e verfasserin |4 aut | |
| 700 | 1 | |a Joubert, Lynette |e verfasserin |4 aut | |
| 773 | 0 | 8 | |i Enthalten in |t Disability and rehabilitation |d 1996 |g 44(2022), 21 vom: 26. Okt., Seite 6333-6339 |w (DE-627)NLM013322559 |x 1464-5165 |7 nnns |
| 773 | 1 | 8 | |g volume:44 |g year:2022 |g number:21 |g day:26 |g month:10 |g pages:6333-6339 |
| 856 | 4 | 0 | |u http://dx.doi.org/10.1080/09638288.2021.1965231 |3 Volltext |
| 912 | |a GBV_USEFLAG_A | ||
| 912 | |a GBV_NLM | ||
| 951 | |a AR | ||
| 952 | |d 44 |j 2022 |e 21 |b 26 |c 10 |h 6333-6339 | ||