Healthcare Professionals' Experiences of the Barriers and Facilitators to Pediatric Pain Management in the Community at End-of-Life : A Qualitative Interview Study
Copyright © 2021 American Academy of Hospice and Palliative Medicine. Published by Elsevier Inc. All rights reserved..
CONTEXTS: Inadequate pain management in community pediatric palliative care is common. Evidence to inform improved pain management in this population is limited.
OBJECTIVES: To explore the barriers and facilitators to pediatric community-based pain management for infants, children and young people at end-of-life as perceived by healthcare professionals.
METHODS: A qualitative interview study was conducted. Semi-structured interviews were undertaken with 29 healthcare professionals; 12 nurses, five GPs, five consultants and registrar doctors, two pharmacists and five support therapists working in primary, secondary or tertiary care in the United Kingdom and involved in community end-of life care of 0 to 18-year-olds.
RESULTS: The data corpus was analyzed using an inductive thematic analysis and seven themes emerged: parents' abilities, beliefs and wellbeing; working relationships between families and healthcare professionals, and between healthcare teams; healthcare professionals' knowledge, education and experience; health services delivery; nature of pain treatment; and pediatric-specific factors. Across themes, the concepts of partnership working between families and healthcare professionals, and within healthcare teams, and sharing expertise were prevalent.
CONCLUSION: Partnership working and trust between healthcare professionals and parents, and within healthcare teams, is needed for effective at-home pediatric palliative pain management. Community healthcare professionals require more education from experienced multidisciplinary teams to effectively manage pediatric pain at end-of-life and prevent emergency hospice or hospital admissions, particularly during the COVID-19 pandemic.
| Medienart: |
E-Artikel |
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| Erscheinungsjahr: |
2022 |
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| Erschienen: |
2022 |
| Enthalten in: |
Zur Gesamtaufnahme - volume:63 |
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| Enthalten in: |
Journal of pain and symptom management - 63(2022), 1 vom: 15. Jan., Seite 98-105 |
| Sprache: |
Englisch |
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| Beteiligte Personen: |
Greenfield, Dr Katie [VerfasserIn] |
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| Links: |
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| Themen: |
Caregivers |
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| Anmerkungen: |
Date Completed 20.01.2022 Date Revised 20.01.2022 published: Print-Electronic Citation Status MEDLINE |
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| doi: |
10.1016/j.jpainsymman.2021.06.026 |
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| funding: |
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| Förderinstitution / Projekttitel: |
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| PPN (Katalog-ID): |
NLM328188948 |
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| 245 | 1 | 0 | |a Healthcare Professionals' Experiences of the Barriers and Facilitators to Pediatric Pain Management in the Community at End-of-Life |b A Qualitative Interview Study |
| 264 | 1 | |c 2022 | |
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| 500 | |a Date Revised 20.01.2022 | ||
| 500 | |a published: Print-Electronic | ||
| 500 | |a Citation Status MEDLINE | ||
| 520 | |a Copyright © 2021 American Academy of Hospice and Palliative Medicine. Published by Elsevier Inc. All rights reserved. | ||
| 520 | |a CONTEXTS: Inadequate pain management in community pediatric palliative care is common. Evidence to inform improved pain management in this population is limited | ||
| 520 | |a OBJECTIVES: To explore the barriers and facilitators to pediatric community-based pain management for infants, children and young people at end-of-life as perceived by healthcare professionals | ||
| 520 | |a METHODS: A qualitative interview study was conducted. Semi-structured interviews were undertaken with 29 healthcare professionals; 12 nurses, five GPs, five consultants and registrar doctors, two pharmacists and five support therapists working in primary, secondary or tertiary care in the United Kingdom and involved in community end-of life care of 0 to 18-year-olds | ||
| 520 | |a RESULTS: The data corpus was analyzed using an inductive thematic analysis and seven themes emerged: parents' abilities, beliefs and wellbeing; working relationships between families and healthcare professionals, and between healthcare teams; healthcare professionals' knowledge, education and experience; health services delivery; nature of pain treatment; and pediatric-specific factors. Across themes, the concepts of partnership working between families and healthcare professionals, and within healthcare teams, and sharing expertise were prevalent | ||
| 520 | |a CONCLUSION: Partnership working and trust between healthcare professionals and parents, and within healthcare teams, is needed for effective at-home pediatric palliative pain management. Community healthcare professionals require more education from experienced multidisciplinary teams to effectively manage pediatric pain at end-of-life and prevent emergency hospice or hospital admissions, particularly during the COVID-19 pandemic | ||
| 650 | 4 | |a Journal Article | |
| 650 | 4 | |a Research Support, Non-U.S. Gov't | |
| 650 | 4 | |a Caregivers | |
| 650 | 4 | |a paediatrics | |
| 650 | 4 | |a pain management | |
| 650 | 4 | |a palliative care | |
| 650 | 4 | |a parents | |
| 650 | 4 | |a qualitative research | |
| 700 | 1 | |a Carter, Bernie |e verfasserin |4 aut | |
| 700 | 1 | |a Harrop, Dr Emily |e verfasserin |4 aut | |
| 700 | 1 | |a Jassal, Dr Sabtir |e verfasserin |4 aut | |
| 700 | 1 | |a Bayliss, Ms Julie |e verfasserin |4 aut | |
| 700 | 1 | |a Renton, Dr Kate |e verfasserin |4 aut | |
| 700 | 1 | |a Holley, Dr Simone |e verfasserin |4 aut | |
| 700 | 1 | |a Howard, Dr Richard F |e verfasserin |4 aut | |
| 700 | 1 | |a Johnson, Ms Margaret |e verfasserin |4 aut | |
| 700 | 1 | |a Liossi, Christina |e verfasserin |4 aut | |
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