International psychometric validation of the Living with Chronic Illness Scale in Spanish-speaking patients with chronic obstructive pulmonary disease

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OBJECTIVES: To validate the Living with Chronic Illness (LW-CI) Scale in patients with chronic obstructive pulmonary disease (COPD).

DESIGN: Observational, cross-sectional validation study with retest. Acceptability, reliability, precision and construct validity were tested.

SETTING: The study took place in primary and secondary specialised units of public and private hospitals of Spain and Colombia.

PARTICIPANTS: The study included 612 patients with COPD assessed from May 2018 to May 2019. A consecutive cases sampling was done. Inclusion criteria included: (A) patients with a diagnosis of COPD; (B) native Spanish speaking; (C) able to read and understand questionnaires; and (D) able to provide informed consent. Exclusion criteria included: (A) cognitive deterioration and (B) pharmacological effect or disorder that could disrupt the assessment.

RESULTS: The LW-CI-COPD presented satisfactory data quality, with no missing data or floor/ceiling effects, showing high internal consistency for all the domains (Cronbach's alpha for the total score 0.92). Test-retest reliability was satisfactory (intraclass correlation coefficient=0.92). The LW-CI-COPD correlated 0.52-0.64 with quality of life and social support measures. The scale demonstrated satisfactory known-groups validity, yielding significantly different scores in patients grouped according to COPD severity levels.

CONCLUSIONS: This has been the first validation study of the LW-CI-COPD. It is a feasible, reliable, valid and precise self-reported scale to measure living with COPD in the Spanish-speaking population. Therefore, it could be recommended for research and clinical practice to measure this concept and evaluate the impact of centred-care interdisciplinary interventions based on the patients' perspective, focused on providing holistic and comprehensive care to patients with COPD.

Medienart:

E-Artikel

Erscheinungsjahr:

2021

Erschienen:

2021

Enthalten in:

Zur Gesamtaufnahme - volume:11

Enthalten in:

BMJ open - 11(2021), 3 vom: 12. März, Seite e039973

Sprache:

Englisch

Beteiligte Personen:

Corchon, Silvia [VerfasserIn]
Rodriguez-Blazquez, Carmen [VerfasserIn]
Carvajal-Carrascal, Gloria [VerfasserIn]
Fuentes-Ramirez, Alejandra [VerfasserIn]
Ruiz de Ocenda, Manuel Ignacio [VerfasserIn]
Caparros, Neus [VerfasserIn]
Timonet-Andreu, Eva [VerfasserIn]
Navarta-Sanchez, Maria Victoria [VerfasserIn]
Ambrosio, Leire [VerfasserIn]

Links:

Volltext

Themen:

Adult pathology
Chronic airways disease
Journal Article
Observational Study
Quality in health care
Research Support, Non-U.S. Gov't

Anmerkungen:

Date Completed 19.05.2021

Date Revised 11.11.2023

published: Electronic

Citation Status MEDLINE

doi:

10.1136/bmjopen-2020-039973

funding:

Förderinstitution / Projekttitel:

PPN (Katalog-ID):

NLM322693675