Supported Decision Making With People at the Margins of Autonomy

This article argues that supported decision making is ideal for people with dynamic cognitive and functional impairments that place them at the margins of autonomy. First, we argue that guardianship and similar surrogate decision-making frameworks may be inappropriate for people with dynamic impairments. Second, we provide a conceptual foundation for supported decision making for individuals with dynamic impairments, which integrates the social model of disability with relational accounts of autonomy. Third, we propose a three-step model that specifies the necessary conditions of supported decision making: identifying domains for support; identifying kinds of supports; and reaching a mutually acceptable and formal agreement. Finally, we identify a series of challenges for supported decision making, provide preliminary responses, and highlight avenues for future bioethics research.

Errataetall:

CommentIn: Am J Bioeth. 2021 Nov;21(11):27-29. - PMID 34710006

Medienart:

E-Artikel

Erscheinungsjahr:

2021

Erschienen:

2021

Enthalten in:

Zur Gesamtaufnahme - volume:21

Enthalten in:

The American journal of bioethics : AJOB - 21(2021), 11 vom: 02. Nov., Seite 4-18

Sprache:

Englisch

Beteiligte Personen:

Peterson, Andrew [VerfasserIn]
Karlawish, Jason [VerfasserIn]
Largent, Emily [VerfasserIn]

Links:

Volltext

Themen:

Aging
Chronic conditions
Decision making
Disability
Health policy
Journal Article
Neurodegenerative disease
Neurology
Rehabilitation
Research Support, N.I.H., Extramural

Anmerkungen:

Date Completed 05.11.2021

Date Revised 07.11.2023

published: Print-Electronic

CommentIn: Am J Bioeth. 2021 Nov;21(11):27-29. - PMID 34710006

Citation Status MEDLINE

doi:

10.1080/15265161.2020.1863507

funding:

Förderinstitution / Projekttitel:

PPN (Katalog-ID):

NLM319370259