Quality-of-life issues and symptoms reported by patients living with haematological malignancy : a qualitative study

© The Author(s), 2020..

BACKGROUND: Our aim was to identify health-related quality-of-life (HRQoL) issues and symptoms in patients with haematological malignancies (HMs) and develop a conceptual framework to reflect the inter-relation between them.

METHODS: A total of 129 patients with HMs were interviewed in a UK multicentre qualitative study. All interviews were audio recorded, transcribed and analysed using NVivo-11.

RESULTS: Overall, 34 issues were reported by patients and were grouped into two parts: quality of life (QoL) and symptoms. The most prevalent HRQoL issues were: eating and drinking habits; social life; physical activity; sleep; and psychological well-being. Furthermore, most prevalent disease-related symptoms were: tiredness; feeling unwell; breathlessness; lack of energy; and back pain. The most prevalent treatment side effects were: tiredness; feeling sick; disturbance in sense of taste; and breathlessness.

CONCLUSIONS: Both HMs and their treatments have a significant impact on patients' HRQoL, in particular on issues such as job-role change, body image and impact on finances.

Medienart:

E-Artikel

Erscheinungsjahr:

2020

Erschienen:

2020

Enthalten in:

Zur Gesamtaufnahme - volume:11

Enthalten in:

Therapeutic advances in hematology - 11(2020) vom: 01., Seite 2040620720955002

Sprache:

Englisch

Beteiligte Personen:

Goswami, Pushpendra [VerfasserIn]
Oliva, Esther N [VerfasserIn]
Ionova, Tatyana [VerfasserIn]
Else, Roger [VerfasserIn]
Kell, Jonathan [VerfasserIn]
Fielding, Adele K [VerfasserIn]
Jennings, Daniel M [VerfasserIn]
Karakantza, Marina [VerfasserIn]
Al-Ismail, Saad [VerfasserIn]
Collins, Graham P [VerfasserIn]
McConnell, Stewart [VerfasserIn]
Langton, Catherine [VerfasserIn]
Salek, Sam [VerfasserIn]

Links:

Volltext

Themen:

Clinical practice
Clinical research
Haematological malignancy
Journal Article
Quality of life
Symptoms

Anmerkungen:

Date Revised 17.04.2022

published: Electronic-eCollection

Citation Status PubMed-not-MEDLINE

doi:

10.1177/2040620720955002

funding:

Förderinstitution / Projekttitel:

PPN (Katalog-ID):

NLM316704415