Disease-related knowledge acquisition through structured patient information in rheumatoid arthritis (StruPI-RA) : First results of the StruPI-RA study in Germany
BACKGROUND/OBJECTIVE: The structured patient information for rheumatoid arthritis (StruPi-RA) program was the first standardized outpatient education program in rheumatoid arthritis (RA) in Germany. The main objective of the study was to determine the efficacy of the StruPi-RA program concerning disease-specific knowledge acquisition in patients with early stage RA or after changing the treatment regimen.
METHODS: A total of 61 patients were included in a control group design, 32 in the intervention group (IG) and 29 in the control group (CG). Patients of the IG attended 3 modules of 90 min in a structured patient information program (StruPI-RA) including the topics of diagnostics, treatment and living with RA. Patients in the CG only received information material from the German Rheumatism League. The primary target criterion was the disease-related acquisition of knowledge, measured with the patient knowledge questionnaire (PKQ). Data were collected before and after participation in StruPI-RA.
RESULTS: The improvement in knowledge in the IG attending the StruPI-RA compared to the CG was significant in time and group comparisons. No influence of disease duration or educational level was observed. The subscale treatment alone showed a significant difference in the group and time comparison.
CONCLUSION: Participation in the StruPI-RA program in early RA was associated with a significant increase in disease-specific knowledge compared to the control group of patients. This leads to better decision-making in terms of treatment, a more beneficial doctor-patient communication and better self-management. In the long term an improvement in treatment adherence and quality of life is expected.
| Medienart: |
E-Artikel |
|---|
| Erscheinungsjahr: |
2021 |
|---|---|
| Erschienen: |
2021 |
| Enthalten in: |
Zur Gesamtaufnahme - volume:80 |
|---|---|
| Enthalten in: |
Zeitschrift fur Rheumatologie - 80(2021), 4 vom: 06. Mai, Seite 364-372 |
| Sprache: |
Deutsch |
|---|
| Weiterer Titel: |
Krankheitsbezogener Wissenserwerb durch strukturierte Patienteninformation bei Rheumatoider Arthritis (StruPI-RA) : Erste Ergebnisse der StruPI-RA-Studie in Deutschland |
|---|
| Beteiligte Personen: |
Schwarze, M [VerfasserIn] |
|---|
| Links: |
|---|
| Themen: |
Early rheumatoid arthritis |
|---|
| Anmerkungen: |
Date Completed 06.05.2021 Date Revised 11.11.2023 published: Print-Electronic Citation Status MEDLINE |
|---|
| doi: |
10.1007/s00393-020-00871-7 |
|---|
| funding: |
|
|---|---|
| Förderinstitution / Projekttitel: |
|
| PPN (Katalog-ID): |
NLM314982434 |
|---|
| LEADER | 01000naa a22002652 4500 | ||
|---|---|---|---|
| 001 | NLM314982434 | ||
| 003 | DE-627 | ||
| 005 | 20231225153922.0 | ||
| 007 | cr uuu---uuuuu | ||
| 008 | 231225s2021 xx |||||o 00| ||ger c | ||
| 024 | 7 | |a 10.1007/s00393-020-00871-7 |2 doi | |
| 028 | 5 | 2 | |a pubmed24n1049.xml |
| 035 | |a (DE-627)NLM314982434 | ||
| 035 | |a (NLM)32926219 | ||
| 040 | |a DE-627 |b ger |c DE-627 |e rakwb | ||
| 041 | |a ger | ||
| 100 | 1 | |a Schwarze, M |e verfasserin |4 aut | |
| 245 | 1 | 0 | |a Disease-related knowledge acquisition through structured patient information in rheumatoid arthritis (StruPI-RA) |b First results of the StruPI-RA study in Germany |
| 246 | 3 | 3 | |a Krankheitsbezogener Wissenserwerb durch strukturierte Patienteninformation bei Rheumatoider Arthritis (StruPI-RA) : Erste Ergebnisse der StruPI-RA-Studie in Deutschland |
| 264 | 1 | |c 2021 | |
| 336 | |a Text |b txt |2 rdacontent | ||
| 337 | |a ƒaComputermedien |b c |2 rdamedia | ||
| 338 | |a ƒa Online-Ressource |b cr |2 rdacarrier | ||
| 500 | |a Date Completed 06.05.2021 | ||
| 500 | |a Date Revised 11.11.2023 | ||
| 500 | |a published: Print-Electronic | ||
| 500 | |a Citation Status MEDLINE | ||
| 520 | |a BACKGROUND/OBJECTIVE: The structured patient information for rheumatoid arthritis (StruPi-RA) program was the first standardized outpatient education program in rheumatoid arthritis (RA) in Germany. The main objective of the study was to determine the efficacy of the StruPi-RA program concerning disease-specific knowledge acquisition in patients with early stage RA or after changing the treatment regimen | ||
| 520 | |a METHODS: A total of 61 patients were included in a control group design, 32 in the intervention group (IG) and 29 in the control group (CG). Patients of the IG attended 3 modules of 90 min in a structured patient information program (StruPI-RA) including the topics of diagnostics, treatment and living with RA. Patients in the CG only received information material from the German Rheumatism League. The primary target criterion was the disease-related acquisition of knowledge, measured with the patient knowledge questionnaire (PKQ). Data were collected before and after participation in StruPI-RA | ||
| 520 | |a RESULTS: The improvement in knowledge in the IG attending the StruPI-RA compared to the CG was significant in time and group comparisons. No influence of disease duration or educational level was observed. The subscale treatment alone showed a significant difference in the group and time comparison | ||
| 520 | |a CONCLUSION: Participation in the StruPI-RA program in early RA was associated with a significant increase in disease-specific knowledge compared to the control group of patients. This leads to better decision-making in terms of treatment, a more beneficial doctor-patient communication and better self-management. In the long term an improvement in treatment adherence and quality of life is expected | ||
| 650 | 4 | |a Journal Article | |
| 650 | 4 | |a Early rheumatoid arthritis | |
| 650 | 4 | |a Health Literacy | |
| 650 | 4 | |a Outpatient care | |
| 650 | 4 | |a Patient education | |
| 650 | 4 | |a Patient knowledge questionnaire | |
| 700 | 1 | |a Fieguth, V |e verfasserin |4 aut | |
| 700 | 1 | |a Schuch, F |e verfasserin |4 aut | |
| 700 | 1 | |a Sandner, P |e verfasserin |4 aut | |
| 700 | 1 | |a Edelmann, E |e verfasserin |4 aut | |
| 700 | 1 | |a Händel, A |e verfasserin |4 aut | |
| 700 | 1 | |a Kettler, M |e verfasserin |4 aut | |
| 700 | 1 | |a Hanke, A |e verfasserin |4 aut | |
| 700 | 1 | |a Kück, M |e verfasserin |4 aut | |
| 700 | 1 | |a Stein, L |e verfasserin |4 aut | |
| 700 | 1 | |a Stille, C |e verfasserin |4 aut | |
| 700 | 1 | |a Fellner, M |e verfasserin |4 aut | |
| 700 | 1 | |a De Angelis, V |e verfasserin |4 aut | |
| 700 | 1 | |a Touissant, S |e verfasserin |4 aut | |
| 700 | 1 | |a Specker, C |e verfasserin |4 aut | |
| 773 | 0 | 8 | |i Enthalten in |t Zeitschrift fur Rheumatologie |d 1974 |g 80(2021), 4 vom: 06. Mai, Seite 364-372 |w (DE-627)NLM000024287 |x 1435-1250 |7 nnns |
| 773 | 1 | 8 | |g volume:80 |g year:2021 |g number:4 |g day:06 |g month:05 |g pages:364-372 |
| 856 | 4 | 0 | |u http://dx.doi.org/10.1007/s00393-020-00871-7 |3 Volltext |
| 912 | |a GBV_USEFLAG_A | ||
| 912 | |a GBV_NLM | ||
| 951 | |a AR | ||
| 952 | |d 80 |j 2021 |e 4 |b 06 |c 05 |h 364-372 | ||