Who decides? Shared decision-making among colorectal cancer surgery patients in China

PURPOSE: Patient-centered care (PCC) and shared decision-making (SDM) is advised within the English medical literature for its positive impact. The benefits of such approaches are said to foster increased trust, patient decision satisfaction, and even better outcomes. Looking at a Chinese cancer hospital, this research sought to understand how surgical decision-making was made among colorectal cancer patients.

METHODS: Observations (n = 36) and semi-structured interviews (n = 24) were conducted with patients and family members.

RESULTS: In the observations, 69.4% of the participating families made the decision to undergo surgery at the end of the consultation. In the interviews, three main themes emerged in regard to the characteristics in the family decision-making model, and they included three structural elements: the patient's sick role, family functional structure, and control of information.

CONCLUSION: This study showed that the Chinese decision-making model is different from the western SDM model. In the Chinese context, family members dominated the decision-making process which raised concerns around informed consent. This may benefit patients insofar as receiving timely treatment in the short term but at the same time may be at the expense of limiting patient's autonomy. The promotion of a new model or a model encompassing family-centered care values may be more appropriate in clinical practice in China that can address the issues around informed consent.

Medienart:

E-Artikel

Erscheinungsjahr:

2020

Erschienen:

2020

Enthalten in:

Zur Gesamtaufnahme - volume:28

Enthalten in:

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer - 28(2020), 11 vom: 17. Nov., Seite 5353-5361

Sprache:

Englisch

Beteiligte Personen:

Zhai, Huiwen [VerfasserIn]
Lavender, Christopher [VerfasserIn]
Li, Cong [VerfasserIn]
Wu, Haotan [VerfasserIn]
Gong, Ni [VerfasserIn]
Cheng, Yu [VerfasserIn]

Links:

Volltext

Themen:

China
Cultural issues
Family
Journal Article
Observational Study
Shared decision-making

Anmerkungen:

Date Completed 30.10.2020

Date Revised 28.12.2020

published: Print-Electronic

Citation Status MEDLINE

doi:

10.1007/s00520-020-05391-3

funding:

Förderinstitution / Projekttitel:

PPN (Katalog-ID):

NLM30724590X