The Portuguese Severe Asthma Registry : Development, Features, and Data Sharing Policies
The Portuguese Severe Asthma Registry (Registo de Asma Grave Portugal, RAG) was developed by an open collaborative network of asthma specialists. RAG collects data from adults and pediatric severe asthma patients that despite treatment optimization and adequate management of comorbidities require step 4/5 treatment according to GINA recommendations. In this paper, we describe the development and implementation of RAG, its features, and data sharing policies. The contents and structure of RAG were defined in a multistep consensus process. A pilot version was pretested and iteratively improved. The selection of data elements for RAG considered other severe asthma registries, aiming at characterizing the patient's clinical status whilst avoiding overloading the standard workflow of the clinical appointment. Features of RAG include automatic assessment of eligibility, easy data input, and exportable data in natural language that can be pasted directly in patients' electronic health record and security features to enable data sharing (among researchers and with other international databases) without compromising patients' confidentiality. RAG is a national web-based disease registry of severe asthma patients, available at asmagrave.pt. It allows prospective clinical data collection, promotes standardized care and collaborative clinical research, and may contribute to inform evidence-based healthcare policies for severe asthma.
| Medienart: |
E-Artikel |
|---|
| Erscheinungsjahr: |
2018 |
|---|---|
| Erschienen: |
2018 |
| Enthalten in: |
Zur Gesamtaufnahme - volume:2018 |
|---|---|
| Enthalten in: |
BioMed research international - 2018(2018) vom: 04., Seite 1495039 |
| Sprache: |
Englisch |
|---|
| Beteiligte Personen: |
Sá-Sousa, Ana [VerfasserIn] |
|---|
| Links: |
|---|
| Themen: |
|---|
| Anmerkungen: |
Date Completed 08.04.2019 Date Revised 05.04.2024 published: Electronic-eCollection Citation Status MEDLINE |
|---|
| doi: |
10.1155/2018/1495039 |
|---|
| funding: |
|
|---|---|
| Förderinstitution / Projekttitel: |
|
| PPN (Katalog-ID): |
NLM292138911 |
|---|
| LEADER | 01000caa a22002652 4500 | ||
|---|---|---|---|
| 001 | NLM292138911 | ||
| 003 | DE-627 | ||
| 005 | 20240405232041.0 | ||
| 007 | cr uuu---uuuuu | ||
| 008 | 231225s2018 xx |||||o 00| ||eng c | ||
| 024 | 7 | |a 10.1155/2018/1495039 |2 doi | |
| 028 | 5 | 2 | |a pubmed24n1366.xml |
| 035 | |a (DE-627)NLM292138911 | ||
| 035 | |a (NLM)30584531 | ||
| 040 | |a DE-627 |b ger |c DE-627 |e rakwb | ||
| 041 | |a eng | ||
| 100 | 1 | |a Sá-Sousa, Ana |e verfasserin |4 aut | |
| 245 | 1 | 4 | |a The Portuguese Severe Asthma Registry |b Development, Features, and Data Sharing Policies |
| 264 | 1 | |c 2018 | |
| 336 | |a Text |b txt |2 rdacontent | ||
| 337 | |a ƒaComputermedien |b c |2 rdamedia | ||
| 338 | |a ƒa Online-Ressource |b cr |2 rdacarrier | ||
| 500 | |a Date Completed 08.04.2019 | ||
| 500 | |a Date Revised 05.04.2024 | ||
| 500 | |a published: Electronic-eCollection | ||
| 500 | |a Citation Status MEDLINE | ||
| 520 | |a The Portuguese Severe Asthma Registry (Registo de Asma Grave Portugal, RAG) was developed by an open collaborative network of asthma specialists. RAG collects data from adults and pediatric severe asthma patients that despite treatment optimization and adequate management of comorbidities require step 4/5 treatment according to GINA recommendations. In this paper, we describe the development and implementation of RAG, its features, and data sharing policies. The contents and structure of RAG were defined in a multistep consensus process. A pilot version was pretested and iteratively improved. The selection of data elements for RAG considered other severe asthma registries, aiming at characterizing the patient's clinical status whilst avoiding overloading the standard workflow of the clinical appointment. Features of RAG include automatic assessment of eligibility, easy data input, and exportable data in natural language that can be pasted directly in patients' electronic health record and security features to enable data sharing (among researchers and with other international databases) without compromising patients' confidentiality. RAG is a national web-based disease registry of severe asthma patients, available at asmagrave.pt. It allows prospective clinical data collection, promotes standardized care and collaborative clinical research, and may contribute to inform evidence-based healthcare policies for severe asthma | ||
| 650 | 4 | |a Journal Article | |
| 700 | 1 | |a Fonseca, João Almeida |e verfasserin |4 aut | |
| 700 | 1 | |a Pereira, Ana Margarida |e verfasserin |4 aut | |
| 700 | 1 | |a Ferreira, Ana |e verfasserin |4 aut | |
| 700 | 1 | |a Arrobas, Ana |e verfasserin |4 aut | |
| 700 | 1 | |a Mendes, Ana |e verfasserin |4 aut | |
| 700 | 1 | |a Drummond, Marta |e verfasserin |4 aut | |
| 700 | 1 | |a Videira, Wanda |e verfasserin |4 aut | |
| 700 | 1 | |a Costa, Tiago |e verfasserin |4 aut | |
| 700 | 1 | |a Farinha, Pedro |e verfasserin |4 aut | |
| 700 | 1 | |a Soares, José |e verfasserin |4 aut | |
| 700 | 1 | |a Rocha, Pedro |e verfasserin |4 aut | |
| 700 | 1 | |a Todo-Bom, Ana |e verfasserin |4 aut | |
| 700 | 1 | |a Sokolova, Anna |e verfasserin |4 aut | |
| 700 | 1 | |a Costa, António |e verfasserin |4 aut | |
| 700 | 1 | |a Fernandes, Beatriz |e verfasserin |4 aut | |
| 700 | 1 | |a Chaves Loureiro, Carla |e verfasserin |4 aut | |
| 700 | 1 | |a Longo, Cecília |e verfasserin |4 aut | |
| 700 | 1 | |a Pardal, Cecília |e verfasserin |4 aut | |
| 700 | 1 | |a Costa, Célia |e verfasserin |4 aut | |
| 700 | 1 | |a Cruz, Cíntia |e verfasserin |4 aut | |
| 700 | 1 | |a Loureiro, Cláudia Chaves |e verfasserin |4 aut | |
| 700 | 1 | |a Lopes, Cristina |e verfasserin |4 aut | |
| 700 | 1 | |a Mesquita, Duarte |e verfasserin |4 aut | |
| 700 | 1 | |a Faria, Emília |e verfasserin |4 aut | |
| 700 | 1 | |a Magalhães, Eunice |e verfasserin |4 aut | |
| 700 | 1 | |a Menezes, Fernando |e verfasserin |4 aut | |
| 700 | 1 | |a Todo-Bom, Filipa |e verfasserin |4 aut | |
| 700 | 1 | |a Carvalho, Francisca |e verfasserin |4 aut | |
| 700 | 1 | |a Regateiro, Frederico S |e verfasserin |4 aut | |
| 700 | 1 | |a Falcão, Helena |e verfasserin |4 aut | |
| 700 | 1 | |a Fernandes, Ivone |e verfasserin |4 aut | |
| 700 | 1 | |a Gaspar-Marques, João |e verfasserin |4 aut | |
| 700 | 1 | |a Viana, Jorge |e verfasserin |4 aut | |
| 700 | 1 | |a Ferreira, José |e verfasserin |4 aut | |
| 700 | 1 | |a Silva, José Manuel |e verfasserin |4 aut | |
| 700 | 1 | |a Simão, Laura |e verfasserin |4 aut | |
| 700 | 1 | |a Almeida, Leonor |e verfasserin |4 aut | |
| 700 | 1 | |a Fernandes, Lígia |e verfasserin |4 aut | |
| 700 | 1 | |a Ferreira, Lurdes |e verfasserin |4 aut | |
| 700 | 1 | |a van Zeller, Mafalda |e verfasserin |4 aut | |
| 700 | 1 | |a Quaresma, Márcia |e verfasserin |4 aut | |
| 700 | 1 | |a Castanho, Margarida |e verfasserin |4 aut | |
| 700 | 1 | |a André, Natália |e verfasserin |4 aut | |
| 700 | 1 | |a Cortesão, Nuno |e verfasserin |4 aut | |
| 700 | 1 | |a Leiria-Pinto, Paula |e verfasserin |4 aut | |
| 700 | 1 | |a Pinto, Paula |e verfasserin |4 aut | |
| 700 | 1 | |a Rosa, Paula |e verfasserin |4 aut | |
| 700 | 1 | |a Carreiro-Martins, Pedro |e verfasserin |4 aut | |
| 700 | 1 | |a Gerardo, Rita |e verfasserin |4 aut | |
| 700 | 1 | |a Silva, Rui |e verfasserin |4 aut | |
| 700 | 1 | |a Lucas, Susana |e verfasserin |4 aut | |
| 700 | 1 | |a Almeida, Teresa |e verfasserin |4 aut | |
| 700 | 1 | |a Calvo, Teresa |e verfasserin |4 aut | |
| 773 | 0 | 8 | |i Enthalten in |t BioMed research international |d 2013 |g 2018(2018) vom: 04., Seite 1495039 |w (DE-627)NLM225739569 |x 2314-6141 |7 nnns |
| 773 | 1 | 8 | |g volume:2018 |g year:2018 |g day:04 |g pages:1495039 |
| 856 | 4 | 0 | |u http://dx.doi.org/10.1155/2018/1495039 |3 Volltext |
| 912 | |a GBV_USEFLAG_A | ||
| 912 | |a GBV_NLM | ||
| 951 | |a AR | ||
| 952 | |d 2018 |j 2018 |b 04 |h 1495039 | ||