Rehabilitation Management of the Patient With Duchenne Muscular Dystrophy
Copyright © 2018 by the American Academy of Pediatrics..
Steadily improving management of Duchenne muscular dystrophy (DMD) continues to lead to improved physical and functional status, allowing increasingly successful transitions to independence and self-actualization in adulthood. Rehabilitation principles remain key to overall management for individuals with DMD with increasing options for ever more successful management, reflecting a changing natural history based on the use of glucocorticoids, more consistent comprehensive care, and the emergence of disease-modifying treatments. Advances and expansion in assessment, cardiorespiratory management, preventive management of contracture and deformity, assistive technology, "smart" technology, and robotics with increased emphasis on function, participation, self-advocacy, and independence in decision-making should allow individuals with DMD to experience childhood and transition to adulthood with support that allows for increasing success in the achievement of individual goals and fulfillment across the life span.
| Medienart: |
E-Artikel |
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| Erscheinungsjahr: |
2018 |
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| Erschienen: |
2018 |
| Enthalten in: |
Zur Gesamtaufnahme - volume:142 |
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| Enthalten in: |
Pediatrics - 142(2018), Suppl 2 vom: 01. Okt., Seite S17-S33 |
| Sprache: |
Englisch |
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| Beteiligte Personen: |
Case, Laura E [VerfasserIn] |
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| Links: |
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| Anmerkungen: |
Date Completed 03.06.2019 Date Revised 03.06.2019 published: Print Citation Status MEDLINE |
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| doi: |
10.1542/peds.2018-0333D |
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| funding: |
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| Förderinstitution / Projekttitel: |
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| PPN (Katalog-ID): |
NLM289109019 |
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| 500 | |a Citation Status MEDLINE | ||
| 520 | |a Copyright © 2018 by the American Academy of Pediatrics. | ||
| 520 | |a Steadily improving management of Duchenne muscular dystrophy (DMD) continues to lead to improved physical and functional status, allowing increasingly successful transitions to independence and self-actualization in adulthood. Rehabilitation principles remain key to overall management for individuals with DMD with increasing options for ever more successful management, reflecting a changing natural history based on the use of glucocorticoids, more consistent comprehensive care, and the emergence of disease-modifying treatments. Advances and expansion in assessment, cardiorespiratory management, preventive management of contracture and deformity, assistive technology, "smart" technology, and robotics with increased emphasis on function, participation, self-advocacy, and independence in decision-making should allow individuals with DMD to experience childhood and transition to adulthood with support that allows for increasing success in the achievement of individual goals and fulfillment across the life span | ||
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| 700 | 1 | |a Eagle, Michelle |e verfasserin |4 aut | |
| 700 | 1 | |a Gulyas, Ann |e verfasserin |4 aut | |
| 700 | 1 | |a Juel, Laura |e verfasserin |4 aut | |
| 700 | 1 | |a Matthews, Dennis |e verfasserin |4 aut | |
| 700 | 1 | |a Newton, Robbin A |e verfasserin |4 aut | |
| 700 | 1 | |a Posselt, Helen F |e verfasserin |4 aut | |
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