Common data elements for epilepsy mobile health systems
Wiley Periodicals, Inc. © 2018 International League Against Epilepsy..
OBJECTIVE: Common data elements (CDEs) are currently unavailable for mobile health (mHealth) in epilepsy devices and related applications. As a result, despite expansive growth of new digital services for people with epilepsy, information collected is often not interoperable or directly comparable. We aim to correct this problem through development of industry-wide standards for mHealth epilepsy data.
METHODS: Using a group of stakeholders from industry, academia, and patient advocacy organizations, we offer a consensus statement for the elements that may facilitate communication among different systems.
RESULTS: A consensus statement is presented for epilepsy mHealth CDEs.
SIGNIFICANCE: Although it is not exclusive, we believe that the use of a minimal common information denominator, specifically these CDEs, will promote innovation, accelerate scientific discovery, and enhance clinical usage across applications and devices in the epilepsy mHealth space. As a consequence, people with epilepsy will have greater flexibility and ultimately more powerful tools to improve their lives.
| Medienart: |
E-Artikel |
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| Erscheinungsjahr: |
2018 |
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| Erschienen: |
2018 |
| Enthalten in: |
Zur Gesamtaufnahme - volume:59 |
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| Enthalten in: |
Epilepsia - 59(2018), 5 vom: 30. Mai, Seite 1020-1026 |
| Sprache: |
Englisch |
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| Beteiligte Personen: |
Goldenholz, Daniel M [VerfasserIn] |
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| Links: |
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| Themen: |
Common data elements |
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| Anmerkungen: |
Date Completed 11.12.2018 Date Revised 14.03.2024 published: Print-Electronic Citation Status MEDLINE |
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| doi: |
10.1111/epi.14066 |
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| funding: |
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| Förderinstitution / Projekttitel: |
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| PPN (Katalog-ID): |
NLM282535470 |
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| 520 | |a Wiley Periodicals, Inc. © 2018 International League Against Epilepsy. | ||
| 520 | |a OBJECTIVE: Common data elements (CDEs) are currently unavailable for mobile health (mHealth) in epilepsy devices and related applications. As a result, despite expansive growth of new digital services for people with epilepsy, information collected is often not interoperable or directly comparable. We aim to correct this problem through development of industry-wide standards for mHealth epilepsy data | ||
| 520 | |a METHODS: Using a group of stakeholders from industry, academia, and patient advocacy organizations, we offer a consensus statement for the elements that may facilitate communication among different systems | ||
| 520 | |a RESULTS: A consensus statement is presented for epilepsy mHealth CDEs | ||
| 520 | |a SIGNIFICANCE: Although it is not exclusive, we believe that the use of a minimal common information denominator, specifically these CDEs, will promote innovation, accelerate scientific discovery, and enhance clinical usage across applications and devices in the epilepsy mHealth space. As a consequence, people with epilepsy will have greater flexibility and ultimately more powerful tools to improve their lives | ||
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| 700 | 1 | |a Krauss, Gregory |e verfasserin |4 aut | |
| 700 | 1 | |a Picard, Rosalind |e verfasserin |4 aut | |
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| 700 | 1 | |a Loddenkemper, Tobias |e verfasserin |4 aut | |
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