Diagnosis and management of Duchenne muscular dystrophy, part 3 : primary care, emergency management, psychosocial care, and transitions of care across the lifespan
Copyright © 2018 Elsevier Ltd. All rights reserved..
Improvements in the function, quality of life, and longevity of patients with Duchenne muscular dystrophy (DMD) have been achieved through a multidisciplinary approach to management across a range of health-care specialties. In part 3 of this update of the DMD care considerations, we focus on primary care, emergency management, psychosocial care, and transitions of care across the lifespan. Many primary care and emergency medicine clinicians are inexperienced at managing the complications of DMD. We provide a guide to the acute and chronic medical conditions that these first-line providers are likely to encounter. With prolonged survival, individuals with DMD face a unique set of challenges related to psychosocial issues and transitions of care. We discuss assessments and interventions that are designed to improve mental health and independence, functionality, and quality of life in critical domains of living, including health care, education, employment, interpersonal relationships, and intimacy.
| Errataetall: |
CommentIn: Lancet Neurol. 2018 May;17(5):389-391. - PMID 29656735 |
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| Medienart: |
E-Artikel |
| Erscheinungsjahr: |
2018 |
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| Erschienen: |
2018 |
| Enthalten in: |
Zur Gesamtaufnahme - volume:17 |
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| Enthalten in: |
The Lancet. Neurology - 17(2018), 5 vom: 20. Mai, Seite 445-455 |
| Sprache: |
Englisch |
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| Beteiligte Personen: |
Birnkrant, David J [VerfasserIn] |
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| Anmerkungen: |
Date Completed 15.03.2019 Date Revised 23.03.2024 published: Print-Electronic CommentIn: Lancet Neurol. 2018 May;17(5):389-391. - PMID 29656735 Citation Status MEDLINE |
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| doi: |
10.1016/S1474-4422(18)30026-7 |
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| funding: |
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| PPN (Katalog-ID): |
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| 500 | |a CommentIn: Lancet Neurol. 2018 May;17(5):389-391. - PMID 29656735 | ||
| 500 | |a Citation Status MEDLINE | ||
| 520 | |a Copyright © 2018 Elsevier Ltd. All rights reserved. | ||
| 520 | |a Improvements in the function, quality of life, and longevity of patients with Duchenne muscular dystrophy (DMD) have been achieved through a multidisciplinary approach to management across a range of health-care specialties. In part 3 of this update of the DMD care considerations, we focus on primary care, emergency management, psychosocial care, and transitions of care across the lifespan. Many primary care and emergency medicine clinicians are inexperienced at managing the complications of DMD. We provide a guide to the acute and chronic medical conditions that these first-line providers are likely to encounter. With prolonged survival, individuals with DMD face a unique set of challenges related to psychosocial issues and transitions of care. We discuss assessments and interventions that are designed to improve mental health and independence, functionality, and quality of life in critical domains of living, including health care, education, employment, interpersonal relationships, and intimacy | ||
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| 700 | 1 | |a Ward, Leanne M |e verfasserin |4 aut | |
| 700 | 0 | |a DMD Care Considerations Working Group |e verfasserin |4 aut | |
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