Psychosocial difficulties from the perspective of persons with neuropsychiatric disorders

PURPOSE: The objective of this study is to determine whether persons with neuropsychiatric disorders experience a common set of psychosocial difficulties using qualitative data from focus groups and individual interviews.

METHOD: The study was performed in five European countries (Finland, Italy, Germany, Poland and Spain) using the focus groups and individual interviews with persons with nine neuropsychiatric disorders (dementia, depression, epilepsy, migraine, multiple sclerosis, Parkinson's disease, schizophrenia, stroke and substance dependence). Digitally recorded sessions were analysed using a step-by-step qualitative and quantitative methodology resulting in the compilation of a common set of psychosocial difficulties using the International Classification of Functioning, Disability and Health (ICF) as a framework.

RESULTS: Sixty-seven persons participated in the study. Most persons with neuropsychiatric disorders experience difficulties in emotional functions, sleeping, carrying out daily routine, working and interpersonal relationships in common. Sixteen out of 33 psychosocial difficulties made up the common set. This set includes mental functions, pain and issues addressing activities and participation and provides first evidence for the hypothesis of horizontal epidemiology of psychosocial difficulties in neuropsychiatric disorders.

CONCLUSIONS: This study provides information about psychosocial difficulties that should be covered in the treatment and rehabilitation of persons with neuropsychiatric disorders regardless of clinical diagnoses.

IMPLICATIONS FOR REHABILITATION: Emotional problems, work and sleep problems should be addressed in all the treatments of neuropsychiatric disorders regardless of their specific diagnosis, etiology and severity. Personality issues should be targeted in the treatment for neurological disorders, whereas communication skill training may also be useful for mental disorders. The effects of medication and social environment on patient's daily life should be considered in all the neuropsychiatric conditions.

Medienart:

E-Artikel

Erscheinungsjahr:

2016

Erschienen:

2016

Enthalten in:

Zur Gesamtaufnahme - volume:38

Enthalten in:

Disability and rehabilitation - 38(2016), 12 vom: 20., Seite 1134-45

Sprache:

Englisch

Beteiligte Personen:

Coenen, Michaela [VerfasserIn]
Cabello, Maria [VerfasserIn]
Umlauf, Silvia [VerfasserIn]
Ayuso-Mateos, José Luis [VerfasserIn]
Anczewska, Marta [VerfasserIn]
Tourunen, Jouni [VerfasserIn]
Leonardi, Matilde [VerfasserIn]
Cieza, Alarcos [VerfasserIn]
PARADISE Consortium [VerfasserIn]
Cieza, Alarcos [Sonstige Person]
Coenen, Michaela [Sonstige Person]
Gall, Heinrich [Sonstige Person]
Kollerits, Barbara [Sonstige Person]
Sabariego, Carla [Sonstige Person]
Ayuso-Mateos, Jose Luis [Sonstige Person]
Cabello, Maria [Sonstige Person]
Mellor, Blanca [Sonstige Person]
Vigil, Jordi [Sonstige Person]
Leonardi, Matilde [Sonstige Person]
Cerniauskaite, Milda [Sonstige Person]
Covelli, Venusia [Sonstige Person]
Giovannetti, Ambra [Sonstige Person]
Quintas, Rui [Sonstige Person]
Raggi, Alberto [Sonstige Person]
Schiavolin, Silvia [Sonstige Person]
Chatterji, Somnath [Sonstige Person]
Bickenbach, Jerome [Sonstige Person]
Ballert, Carolina [Sonstige Person]
Brach, Mirjam [Sonstige Person]
Lückenkemper, Miriam [Sonstige Person]
Baker, Mary [Sonstige Person]
Benbow, Alastair [Sonstige Person]
Hawrot, Tadeusz [Sonstige Person]
Hartley, Sally [Sonstige Person]
Psychiatrii, Instytut [Sonstige Person]
Anczewska, Marta [Sonstige Person]
Charzyńska, Katarzyna [Sonstige Person]
Chrostek, Anna [Sonstige Person]
Świtaj, Piotr [Sonstige Person]
Roszczyńska-Michta, Joanna [Sonstige Person]
Waszkiewicz, Justyna [Sonstige Person]
Finocchiaro, Carla [Sonstige Person]
Cogoni, Serena [Sonstige Person]
Pitkänen, Tuuli [Sonstige Person]
Holopainen, Antti [Sonstige Person]
Jokela, Kirsi [Sonstige Person]
Kaskela, Teemu [Sonstige Person]
Levola, Jonna [Sonstige Person]
Tourunen, Jouni [Sonstige Person]

Links:

Volltext

Themen:

Disability and Health
International Classification of Functioning
Journal Article
Mental disorder
Multicenter Study
Neuropsychiatric disorders
Research Support, Non-U.S. Gov't

Anmerkungen:

Date Completed 10.01.2017

Date Revised 10.04.2022

published: Print-Electronic

Citation Status MEDLINE

doi:

10.3109/09638288.2015.1074729

funding:

Förderinstitution / Projekttitel:

PPN (Katalog-ID):

NLM251987698