Quality of life and unmet needs in patients with inflammatory arthropathies : results from the multicentre, observational RAPSODIA study
© The Author 2014. Published by Oxford University Press on behalf of the British Society for Rheumatology. All rights reserved. For Permissions, please email: journals.permissionsoup.com..
OBJECTIVE: The observational RAPSODIA (RA, PsA and spondylitis including AS) study was planned to assess, in patients with RA, AS and PsA, their involvement in medical decisions, quality of life and unmet needs 15 years after the introduction of biologic therapies in Italy.
METHODS: Patients completed a questionnaire during their scheduled rheumatology consultation. They rated their satisfaction with disease knowledge on a 5-point scale (1 = not at all satisfied, 5 = totally satisfied). Self-efficacy, defined as judgement of one's own ability to achieve given levels of performance and exercise control over events, was measured using the pain subscale of the Arthritis Self-Efficacy Scale. Patients' global assessments of pain, fatigue and disease activity were recorded on 100 mm visual analogue scales (0 = best status, 100 = worse status). Disease activity status was assessed using standard tools. Health status was measured using the 36-item Short Form Health Survey and the Italian version of the HAQ.
RESULTS: Ninety-eight per cent of patients reported that their health care practitioner used understandable terms to explain their condition. Joint issues and general symptoms (e.g. fatigue and malaise) were common. All measures of disease activity and self-efficacy scores were markedly better in patients receiving biologic vs conventional therapy. Biologic therapy recipients were more productive at work.
CONCLUSION: These results confirm that some patients with rheumatic diseases are not satisfied with the level of information they receive about their treatments. Biologic therapy appears to be an important advance, with patients receiving this form of treatment having improved symptoms and productivity. However, patients still report unmet needs. Thus further research, and perhaps new and more effective therapies, along with better education and multidisciplinary collaboration, are required to improve outcomes.
| Medienart: |
E-Artikel |
|---|
| Erscheinungsjahr: |
2015 |
|---|---|
| Erschienen: |
2015 |
| Enthalten in: |
Zur Gesamtaufnahme - volume:54 |
|---|---|
| Enthalten in: |
Rheumatology (Oxford, England) - 54(2015), 5 vom: 21. Mai, Seite 792-7 |
| Sprache: |
Englisch |
|---|
| Beteiligte Personen: |
Giacomelli, Roberto [VerfasserIn] |
|---|
| Links: |
|---|
| Anmerkungen: |
Date Completed 20.07.2015 Date Revised 08.04.2022 published: Print-Electronic Citation Status MEDLINE |
|---|
| doi: |
10.1093/rheumatology/keu398 |
|---|
| funding: |
|
|---|---|
| Förderinstitution / Projekttitel: |
|
| PPN (Katalog-ID): |
NLM242539955 |
|---|
| LEADER | 01000naa a22002652 4500 | ||
|---|---|---|---|
| 001 | NLM242539955 | ||
| 003 | DE-627 | ||
| 005 | 20231224130624.0 | ||
| 007 | cr uuu---uuuuu | ||
| 008 | 231224s2015 xx |||||o 00| ||eng c | ||
| 024 | 7 | |a 10.1093/rheumatology/keu398 |2 doi | |
| 028 | 5 | 2 | |a pubmed24n0808.xml |
| 035 | |a (DE-627)NLM242539955 | ||
| 035 | |a (NLM)25288786 | ||
| 040 | |a DE-627 |b ger |c DE-627 |e rakwb | ||
| 041 | |a eng | ||
| 100 | 1 | |a Giacomelli, Roberto |e verfasserin |4 aut | |
| 245 | 1 | 0 | |a Quality of life and unmet needs in patients with inflammatory arthropathies |b results from the multicentre, observational RAPSODIA study |
| 264 | 1 | |c 2015 | |
| 336 | |a Text |b txt |2 rdacontent | ||
| 337 | |a ƒaComputermedien |b c |2 rdamedia | ||
| 338 | |a ƒa Online-Ressource |b cr |2 rdacarrier | ||
| 500 | |a Date Completed 20.07.2015 | ||
| 500 | |a Date Revised 08.04.2022 | ||
| 500 | |a published: Print-Electronic | ||
| 500 | |a Citation Status MEDLINE | ||
| 520 | |a © The Author 2014. Published by Oxford University Press on behalf of the British Society for Rheumatology. All rights reserved. For Permissions, please email: journals.permissionsoup.com. | ||
| 520 | |a OBJECTIVE: The observational RAPSODIA (RA, PsA and spondylitis including AS) study was planned to assess, in patients with RA, AS and PsA, their involvement in medical decisions, quality of life and unmet needs 15 years after the introduction of biologic therapies in Italy | ||
| 520 | |a METHODS: Patients completed a questionnaire during their scheduled rheumatology consultation. They rated their satisfaction with disease knowledge on a 5-point scale (1 = not at all satisfied, 5 = totally satisfied). Self-efficacy, defined as judgement of one's own ability to achieve given levels of performance and exercise control over events, was measured using the pain subscale of the Arthritis Self-Efficacy Scale. Patients' global assessments of pain, fatigue and disease activity were recorded on 100 mm visual analogue scales (0 = best status, 100 = worse status). Disease activity status was assessed using standard tools. Health status was measured using the 36-item Short Form Health Survey and the Italian version of the HAQ | ||
| 520 | |a RESULTS: Ninety-eight per cent of patients reported that their health care practitioner used understandable terms to explain their condition. Joint issues and general symptoms (e.g. fatigue and malaise) were common. All measures of disease activity and self-efficacy scores were markedly better in patients receiving biologic vs conventional therapy. Biologic therapy recipients were more productive at work | ||
| 520 | |a CONCLUSION: These results confirm that some patients with rheumatic diseases are not satisfied with the level of information they receive about their treatments. Biologic therapy appears to be an important advance, with patients receiving this form of treatment having improved symptoms and productivity. However, patients still report unmet needs. Thus further research, and perhaps new and more effective therapies, along with better education and multidisciplinary collaboration, are required to improve outcomes | ||
| 650 | 4 | |a Journal Article | |
| 650 | 4 | |a Multicenter Study | |
| 650 | 4 | |a Observational Study | |
| 650 | 4 | |a Research Support, Non-U.S. Gov't | |
| 650 | 4 | |a ankylosing spondylitis | |
| 650 | 4 | |a biologic therapy | |
| 650 | 4 | |a patient education | |
| 650 | 4 | |a productivity | |
| 650 | 4 | |a psoriatic arthritis | |
| 650 | 4 | |a quality of life | |
| 650 | 4 | |a rheumatoid arthritis | |
| 650 | 4 | |a unmet needs | |
| 650 | 7 | |a Biological Products |2 NLM | |
| 700 | 1 | |a Gorla, Roberto |e verfasserin |4 aut | |
| 700 | 1 | |a Trotta, Francesco |e verfasserin |4 aut | |
| 700 | 1 | |a Tirri, Rosella |e verfasserin |4 aut | |
| 700 | 1 | |a Grassi, Walter |e verfasserin |4 aut | |
| 700 | 1 | |a Bazzichi, Laura |e verfasserin |4 aut | |
| 700 | 1 | |a Galeazzi, Mauro |e verfasserin |4 aut | |
| 700 | 1 | |a Matucci-Cerinic, Marco |e verfasserin |4 aut | |
| 700 | 1 | |a Scarpa, Raffaele |e verfasserin |4 aut | |
| 700 | 1 | |a Cantini, Fabrizio |e verfasserin |4 aut | |
| 700 | 1 | |a Gerli, Roberto |e verfasserin |4 aut | |
| 700 | 1 | |a Lapadula, Giovanni |e verfasserin |4 aut | |
| 700 | 1 | |a Sinigaglia, Luigi |e verfasserin |4 aut | |
| 700 | 1 | |a Ferraccioli, Gianfranco |e verfasserin |4 aut | |
| 700 | 1 | |a Olivieri, Ignazio |e verfasserin |4 aut | |
| 700 | 1 | |a Ruscitti, Piero |e verfasserin |4 aut | |
| 700 | 1 | |a Sarzi-Puttini, Piercarlo |e verfasserin |4 aut | |
| 773 | 0 | 8 | |i Enthalten in |t Rheumatology (Oxford, England) |d 1999 |g 54(2015), 5 vom: 21. Mai, Seite 792-7 |w (DE-627)NLM102581908 |x 1462-0332 |7 nnns |
| 773 | 1 | 8 | |g volume:54 |g year:2015 |g number:5 |g day:21 |g month:05 |g pages:792-7 |
| 856 | 4 | 0 | |u http://dx.doi.org/10.1093/rheumatology/keu398 |3 Volltext |
| 912 | |a GBV_USEFLAG_A | ||
| 912 | |a GBV_NLM | ||
| 951 | |a AR | ||
| 952 | |d 54 |j 2015 |e 5 |b 21 |c 05 |h 792-7 | ||