NEPTUNE Match Study : Nephrotic Syndrome Study Network (NEPTUNE) Match Study
This is a prospective, open-label study testing the ability to effectively communicate patient-specific clinical trial matching with kidney patients and clinician investigators. The study consists of four components:Recruitment of participants from the NEPTUNE observational cohort studyGeneration of participant profile-trial match assessment using data from the NEPTUNE observational study and profiling units by the NEPTUNE Molecular Nephrology BoardEstablishing and testing a framework to communicate disease-trial drug mechanism matching with investigators and patientsRetrospective comparison of kidney health outcomes in subjects enrolled in trials that aligned with their match vs. trial subjects with mis-aligned or unknown match alignment..
| Medienart: |
|
|---|
Klinische Studie| Erscheinungsjahr: |
2024 |
|---|---|
| Erschienen: |
2024 |
| Enthalten in: |
ClinicalTrials.gov - (2024) vom: 17. Jan. Zur Gesamtaufnahme - year:2024 |
|---|
| Sprache: |
Englisch |
|---|
| Links: |
Volltext [kostenfrei] |
|---|
| Themen: |
610 |
|---|
| Anmerkungen: |
Source: Link to the current ClinicalTrials.gov record., First posted: October 1, 2020, Last downloaded: ClinicalTrials.gov processed this data on January 24, 2024, Last updated: January 24, 2024 |
|---|
| fisyears: |
|
|---|---|
| Förderinstitution / Projekttitel: |
|
| PPN (Katalog-ID): |
CTG003532585 |
|---|
| LEADER | 01000caa a22002652 4500 | ||
|---|---|---|---|
| 001 | CTG003532585 | ||
| 003 | DE-627 | ||
| 005 | 20240124010504.0 | ||
| 007 | cr uuu---uuuuu | ||
| 008 | 210408s2024 xx |||||o 00| ||eng c | ||
| 035 | |a (DE-627)CTG003532585 | ||
| 035 | |a (UBBS_Klinische_Studien)NCT04571658 | ||
| 035 | |a (UBBS_Klinische_Studien)HUM00158219-Sub | ||
| 035 | |a (UBBS_Klinische_Studien)U54DK083912 | ||
| 040 | |a DE-627 |b ger |c DE-627 |e rakwb | ||
| 041 | |a eng | ||
| 245 | 1 | 0 | |a NEPTUNE Match Study |b Nephrotic Syndrome Study Network (NEPTUNE) Match Study |
| 264 | 1 | |c 2024 | |
| 336 | |a Text |b txt |2 rdacontent | ||
| 337 | |a Computermedien |b c |2 rdamedia | ||
| 338 | |a Online-Ressource |b cr |2 rdacarrier | ||
| 500 | |a Source: Link to the current ClinicalTrials.gov record., First posted: October 1, 2020, Last downloaded: ClinicalTrials.gov processed this data on January 24, 2024, Last updated: January 24, 2024 | ||
| 520 | |a This is a prospective, open-label study testing the ability to effectively communicate patient-specific clinical trial matching with kidney patients and clinician investigators. The study consists of four components:Recruitment of participants from the NEPTUNE observational cohort studyGeneration of participant profile-trial match assessment using data from the NEPTUNE observational study and profiling units by the NEPTUNE Molecular Nephrology BoardEstablishing and testing a framework to communicate disease-trial drug mechanism matching with investigators and patientsRetrospective comparison of kidney health outcomes in subjects enrolled in trials that aligned with their match vs. trial subjects with mis-aligned or unknown match alignment. | ||
| 650 | 2 | |a Nephrotic Syndrome | |
| 650 | 2 | |a Nephrosis | |
| 650 | 2 | |a Glomerulonephritis, Membranous | |
| 650 | 2 | |a Glomerulosclerosis, Focal Segmental | |
| 650 | 2 | |a Nephrosis, Lipoid | |
| 650 | 2 | |a Syndrome | |
| 650 | 4 | |a Study Type: Observational | |
| 650 | 4 | |a Recruitment Status: Enrolling by invitation | |
| 650 | 4 | |a 610 | |
| 773 | 0 | 8 | |i Enthalten in |t ClinicalTrials.gov |g (2024) vom: 17. Jan. |
| 773 | 1 | 8 | |g year:2024 |g day:17 |g month:01 |
| 856 | 4 | 0 | |u https://clinicaltrials.gov/show/NCT04571658 |z kostenfrei |3 Volltext |
| 912 | |a GBV_CTG | ||
| 951 | |a AR | ||
| 952 | |j 2024 |b 17 |c 01 | ||