Dying as an issue of public concern : cultural scripts on palliative care in Sweden
© 2021. The Author(s)..
In Sweden, palliative care has, over the past decades, been object to policies and guidelines with focus on how to achieve "good palliative care". The aim of this study has been to analyse how experts make sense of the development and the current state of palliative care. Departing from this aim, focus has been on identifying how personal experiences of 'the self' are intertwined with culturally available meta-level concepts and how experts contribute to construct new scripts on palliative care. Twelve qualitative interviews were conducted. Four scripts were identified after analysing the empirical material: 1. script of paths towards working within palliative care; 2. script of desirable and deterrent reference points; 3. script of tensions between improvement and bureaucracy; and 4. script of low status and uncertain definitions. The findings of this study illustrate how experts in complex ways intertwine experiences of 'the self' with meta-levels concepts in order to make sense of the field of palliative care. The participants did not endorse one "right way" of "good" deaths. Instead, palliative care was considered to be located in a complex state where the historical development, consisting of both desirable ideals, death denials and lack of guidelines, and more recent developments of strives towards universal concepts, "improvement" and increased bureaucracy altogether played a significant role for how palliative care has developed and is organised and conducted today.
Medienart: |
E-Artikel |
---|
Erscheinungsjahr: |
2021 |
---|---|
Erschienen: |
2021 |
Enthalten in: |
Zur Gesamtaufnahme - volume:24 |
---|---|
Enthalten in: |
Medicine, health care, and philosophy - 24(2021), 4 vom: 06. Dez., Seite 507-516 |
Sprache: |
Englisch |
---|
Beteiligte Personen: |
Agren, Axel [VerfasserIn] |
---|
Links: |
---|
Themen: |
Cultural scripts |
---|
Anmerkungen: |
Date Completed 25.11.2021 Date Revised 18.02.2022 published: Print-Electronic Citation Status MEDLINE |
---|
doi: |
10.1007/s11019-021-10022-7 |
---|
funding: |
|
---|---|
Förderinstitution / Projekttitel: |
|
PPN (Katalog-ID): |
NLM32511742X |
---|
LEADER | 01000naa a22002652 4500 | ||
---|---|---|---|
001 | NLM32511742X | ||
003 | DE-627 | ||
005 | 20231225191745.0 | ||
007 | cr uuu---uuuuu | ||
008 | 231225s2021 xx |||||o 00| ||eng c | ||
024 | 7 | |a 10.1007/s11019-021-10022-7 |2 doi | |
028 | 5 | 2 | |a pubmed24n1083.xml |
035 | |a (DE-627)NLM32511742X | ||
035 | |a (NLM)33959886 | ||
040 | |a DE-627 |b ger |c DE-627 |e rakwb | ||
041 | |a eng | ||
100 | 1 | |a Agren, Axel |e verfasserin |4 aut | |
245 | 1 | 0 | |a Dying as an issue of public concern |b cultural scripts on palliative care in Sweden |
264 | 1 | |c 2021 | |
336 | |a Text |b txt |2 rdacontent | ||
337 | |a ƒaComputermedien |b c |2 rdamedia | ||
338 | |a ƒa Online-Ressource |b cr |2 rdacarrier | ||
500 | |a Date Completed 25.11.2021 | ||
500 | |a Date Revised 18.02.2022 | ||
500 | |a published: Print-Electronic | ||
500 | |a Citation Status MEDLINE | ||
520 | |a © 2021. The Author(s). | ||
520 | |a In Sweden, palliative care has, over the past decades, been object to policies and guidelines with focus on how to achieve "good palliative care". The aim of this study has been to analyse how experts make sense of the development and the current state of palliative care. Departing from this aim, focus has been on identifying how personal experiences of 'the self' are intertwined with culturally available meta-level concepts and how experts contribute to construct new scripts on palliative care. Twelve qualitative interviews were conducted. Four scripts were identified after analysing the empirical material: 1. script of paths towards working within palliative care; 2. script of desirable and deterrent reference points; 3. script of tensions between improvement and bureaucracy; and 4. script of low status and uncertain definitions. The findings of this study illustrate how experts in complex ways intertwine experiences of 'the self' with meta-levels concepts in order to make sense of the field of palliative care. The participants did not endorse one "right way" of "good" deaths. Instead, palliative care was considered to be located in a complex state where the historical development, consisting of both desirable ideals, death denials and lack of guidelines, and more recent developments of strives towards universal concepts, "improvement" and increased bureaucracy altogether played a significant role for how palliative care has developed and is organised and conducted today | ||
650 | 4 | |a Journal Article | |
650 | 4 | |a Cultural scripts | |
650 | 4 | |a Palliative care | |
650 | 4 | |a Policymaking | |
650 | 4 | |a Qualitative interviews | |
700 | 1 | |a Nedlund, Ann-Charlotte |e verfasserin |4 aut | |
700 | 1 | |a Cedersund, Elisabet |e verfasserin |4 aut | |
700 | 1 | |a Krevers, Barbro |e verfasserin |4 aut | |
773 | 0 | 8 | |i Enthalten in |t Medicine, health care, and philosophy |d 1995 |g 24(2021), 4 vom: 06. Dez., Seite 507-516 |w (DE-627)NLM097537632 |x 1572-8633 |7 nnns |
773 | 1 | 8 | |g volume:24 |g year:2021 |g number:4 |g day:06 |g month:12 |g pages:507-516 |
856 | 4 | 0 | |u http://dx.doi.org/10.1007/s11019-021-10022-7 |3 Volltext |
912 | |a GBV_USEFLAG_A | ||
912 | |a GBV_NLM | ||
951 | |a AR | ||
952 | |d 24 |j 2021 |e 4 |b 06 |c 12 |h 507-516 |