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The care of patients with Duchenne, Becker, and other muscular dystrophies in the COVID-19 pandemic

© 2020 Wiley Periodicals, Inc.

The coronavirus disease 2019 (COVID-19) pandemic has resulted in the reorganization of health-care settings affecting clinical care delivery to patients with Duchenne and Becker muscular dystrophy (DBMD) as well as other inherited muscular dystrophies. The magnitude of the impact of this public health emergency on the care of patients with DBMD is unclear as they are suspected of having an increased risk for severe manifestations of COVID-19. In this article, the authors discuss their consensus recommendations pertaining to care of these patients during the pandemic. We address issues surrounding corticosteroid and exon-skipping treatments, cardiac medications, hydroxychloroquine use, emergency/respiratory care, rehabilitation management, and the conduct of clinical trials. We highlight the importance of collaborative treatment decisions between the patient, family, and health-care provider, considering any geographic or institution-specific policies and precautions for COVID-19. We advocate for continuing multidisciplinary care for these patients using telehealth

Year of Publication: 2020
Contained in: Muscle & nerve Vol. 62, No. 1 (2020), p. 41-45
All journal articles: Search for all articles in this journal
Language: English
Contributors: Veerapandiyan, Aravindhan | Author
Wagner, Kathryn R
Apkon, Susan
McDonald, Craig M
Mathews, Katherine D
Parsons, Julie A
Wong, Brenda L
Eichinger, Katy
Shieh, Perry B
Butterfield, Russell J
Rao, Vamshi K
Smith, Edward C
Proud, Crystal M
Connolly, Anne M
Ciafaloni, Emma
Full text access:
Electronic availability is being checked...
Links: Full Text (dx.doi.org)
Keywords: BMD
COVID-19
DMD
Journal Article
Review
consensus
muscular dystrophy
recommendations
Additional Keywords: *Betacoronavirus
*Disease Management
*Pandemics
Coronavirus Infections
Humans
Muscular Dystrophy, Duchenne
Pneumonia, Viral
ISSN: 1097-4598
Note: Copyright: From MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine
Notes: Date Completed 29.06.2020
Date Revised 29.06.2020
published: Print-Electronic
Citation Status MEDLINE
Copyright: From MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine
PMID:
    32329920
Physical Description: Online-Ressource
ID (e.g. DOI, URN): 10.1002/mus.26902
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