Parental Self-efficacy and Health-related Outcomes Among Children with Hirschsprung Disease : A Cross-sectional Study
Copyright © 2020 Elsevier Inc. All rights reserved..
PURPOSE: Little attention has been put to parental self-efficacy (PSE) on the home care management and its impact on the health-related outcome in children with Hirschsprung disease (HD) after surgery. The purpose of this study was to investigate the association between PSE and post-operative outcome and quality of life (QoL) in children with HD.
DESIGN AND METHODS: This study adopted a cross-sectional study design. Children diagnosed with HD who had surgery during 2015 and 2018, and their parents were included. Parental self-efficacy, children's post-operative fecal continence and QoL were evaluated with validated questionnaires; post-operative readmission and adverse events were extracted from electronic medical record system.
RESULTS: Of the eligible families, 69.6% (96/138) responded to the follow-up. The median children's age at surgery and current age were 16 (interquartile range: 10-32) and 45 (interquartile range: 39.7-57) months, respectively. The mean PSE score is 8.78 points, with the lowest score in the bowel habit training dimension (7.88 ± 2.28), followed by getting social support dimension (8.07 ± 2.64). Multivariable linear regression showed that PSE was associated with fecal continence (β = 0.043, 95% CI 0.013-0.072), pediatric QoL total score (β = 0.210, 95% CI 0.011-0.409) and social score (β = 0.273, 95% CI 0.022-0.525). No associations were observed between PSE and weight z-score, height z-score, readmission or adverse events.
CONCLUSIONS: PSE is correlated with fecal continence and QoL of children with HD.
PRACTICE IMPLICATIONS: PSE should be considered when designing a parental education program, with the focus on bowel habit training and getting social support.
| Medienart: |
E-Artikel |
|---|
| Erscheinungsjahr: |
2020 |
|---|---|
| Erschienen: |
2020 |
| Enthalten in: |
Zur Gesamtaufnahme - volume:53 |
|---|---|
| Enthalten in: |
Journal of pediatric nursing - 53(2020) vom: 08. Juli, Seite e164-e170 |
| Sprache: |
Englisch |
|---|
| Beteiligte Personen: |
Dai, Ying [VerfasserIn] |
|---|
| Links: |
|---|
| Themen: |
Health-related outcome |
|---|
| Anmerkungen: |
Date Completed 27.04.2021 Date Revised 27.04.2021 published: Print-Electronic Citation Status MEDLINE |
|---|
| doi: |
10.1016/j.pedn.2020.03.015 |
|---|
| funding: |
|
|---|---|
| Förderinstitution / Projekttitel: |
|
| PPN (Katalog-ID): |
NLM309855292 |
|---|
| LEADER | 01000naa a22002652 4500 | ||
|---|---|---|---|
| 001 | NLM309855292 | ||
| 003 | DE-627 | ||
| 005 | 20231225134826.0 | ||
| 007 | cr uuu---uuuuu | ||
| 008 | 231225s2020 xx |||||o 00| ||eng c | ||
| 024 | 7 | |a 10.1016/j.pedn.2020.03.015 |2 doi | |
| 028 | 5 | 2 | |a pubmed24n1032.xml |
| 035 | |a (DE-627)NLM309855292 | ||
| 035 | |a (NLM)32402559 | ||
| 035 | |a (PII)S0882-5963(19)30575-5 | ||
| 040 | |a DE-627 |b ger |c DE-627 |e rakwb | ||
| 041 | |a eng | ||
| 100 | 1 | |a Dai, Ying |e verfasserin |4 aut | |
| 245 | 1 | 0 | |a Parental Self-efficacy and Health-related Outcomes Among Children with Hirschsprung Disease |b A Cross-sectional Study |
| 264 | 1 | |c 2020 | |
| 336 | |a Text |b txt |2 rdacontent | ||
| 337 | |a ƒaComputermedien |b c |2 rdamedia | ||
| 338 | |a ƒa Online-Ressource |b cr |2 rdacarrier | ||
| 500 | |a Date Completed 27.04.2021 | ||
| 500 | |a Date Revised 27.04.2021 | ||
| 500 | |a published: Print-Electronic | ||
| 500 | |a Citation Status MEDLINE | ||
| 520 | |a Copyright © 2020 Elsevier Inc. All rights reserved. | ||
| 520 | |a PURPOSE: Little attention has been put to parental self-efficacy (PSE) on the home care management and its impact on the health-related outcome in children with Hirschsprung disease (HD) after surgery. The purpose of this study was to investigate the association between PSE and post-operative outcome and quality of life (QoL) in children with HD | ||
| 520 | |a DESIGN AND METHODS: This study adopted a cross-sectional study design. Children diagnosed with HD who had surgery during 2015 and 2018, and their parents were included. Parental self-efficacy, children's post-operative fecal continence and QoL were evaluated with validated questionnaires; post-operative readmission and adverse events were extracted from electronic medical record system | ||
| 520 | |a RESULTS: Of the eligible families, 69.6% (96/138) responded to the follow-up. The median children's age at surgery and current age were 16 (interquartile range: 10-32) and 45 (interquartile range: 39.7-57) months, respectively. The mean PSE score is 8.78 points, with the lowest score in the bowel habit training dimension (7.88 ± 2.28), followed by getting social support dimension (8.07 ± 2.64). Multivariable linear regression showed that PSE was associated with fecal continence (β = 0.043, 95% CI 0.013-0.072), pediatric QoL total score (β = 0.210, 95% CI 0.011-0.409) and social score (β = 0.273, 95% CI 0.022-0.525). No associations were observed between PSE and weight z-score, height z-score, readmission or adverse events | ||
| 520 | |a CONCLUSIONS: PSE is correlated with fecal continence and QoL of children with HD | ||
| 520 | |a PRACTICE IMPLICATIONS: PSE should be considered when designing a parental education program, with the focus on bowel habit training and getting social support | ||
| 650 | 4 | |a Journal Article | |
| 650 | 4 | |a Health-related outcome | |
| 650 | 4 | |a Hirschsprung disease | |
| 650 | 4 | |a Parental self-efficacy | |
| 650 | 4 | |a Quality of life | |
| 700 | 1 | |a Zheng, Haiqing |e verfasserin |4 aut | |
| 700 | 1 | |a Liang, Huiying |e verfasserin |4 aut | |
| 700 | 1 | |a Li, Ruiqiong |e verfasserin |4 aut | |
| 700 | 1 | |a Lan, Menglong |e verfasserin |4 aut | |
| 700 | 1 | |a Zeng, Jixiao |e verfasserin |4 aut | |
| 773 | 0 | 8 | |i Enthalten in |t Journal of pediatric nursing |d 1996 |g 53(2020) vom: 08. Juli, Seite e164-e170 |w (DE-627)NLM01272484X |x 1532-8449 |7 nnns |
| 773 | 1 | 8 | |g volume:53 |g year:2020 |g day:08 |g month:07 |g pages:e164-e170 |
| 856 | 4 | 0 | |u http://dx.doi.org/10.1016/j.pedn.2020.03.015 |3 Volltext |
| 912 | |a GBV_USEFLAG_A | ||
| 912 | |a GBV_NLM | ||
| 951 | |a AR | ||
| 952 | |d 53 |j 2020 |b 08 |c 07 |h e164-e170 | ||